12th Annual 5k/2k Invitation
The POTScast31 Elo 2025

12th Annual 5k/2k Invitation

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

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Jaksot(250)

E130: Health Willpower Strategies with Nutritionist Jill Brook

E130: Health Willpower Strategies with Nutritionist Jill Brook

Join our own Jill Brook to think about 10 strategies to help you build your willpower for healthy eating and other healthy habits. Willpower can be learned with practice, so don't worry if it doesn't ...

11 Huhti 202337min

E129: MCAS Diagnostic Criteria “Consensus-2" with Dr. Lawrence Afrin as part of the Mast Cell Matters series

E129: MCAS Diagnostic Criteria “Consensus-2" with Dr. Lawrence Afrin as part of the Mast Cell Matters series

Dr. Afrin, a world expert in all things mast cell, talks in depth about issues with the first MCAS "consensus" statement and the need for a second MCAS consensus statement so that patients can be trea...

4 Huhti 202355min

E128: Belle from Canada, saline and physiotherapy helped her walk across her graduation stage

E128: Belle from Canada, saline and physiotherapy helped her walk across her graduation stage

Belle first realized that something was wrong at 16. Living in Greece didn't help, but upon return to Canada she started to find some answers. Her goal? Walk across her high school graduate stage. Fin...

1 Huhti 202327min

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

E127: New Clues in Plasma Proteins in POTS Patients with Dr. Artur Fedorowski

Dr. Fedorowski is one of the top POTS researchers in the world. This episode discusses plasma proteins that are different in POTS patients vs. controls. What might this mean? What is his new POTS symp...

28 Maalis 202348min

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

E126: Home Infusions with Jonathan Abraham, RN BSN CCRN

Jonathan shares his experience as a nurse who has been doing home infusions for patients needing IVIG. He talks about the highs and lows of his job with humor. You can read the transcript for this epi...

21 Maalis 202316min

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

E125: POTS Diary with Dr. Alisha Alls, who suffered traumatic brain injury leading to her POTS

Dr. Alls suffered a traumatic brain injury, had her heart stop, and developed POTS as a teenager. She speaks eloquently about her life experiences and how they have shaped her into the person she is t...

18 Maalis 202332min

E124: Pregnancy in POTS Patients with Nurse and Doctoral Candidate Kate Morgan

E124: Pregnancy in POTS Patients with Nurse and Doctoral Candidate Kate Morgan

Kate Morgan and her team just published a paper studying pregnancy in women with POTS. She found that having a baby is safe, as is taking certain medications during the pregnancy. If you have POTS and...

14 Maalis 202347min

E123: Argenx Clinical Trial on Post-COVID POTS

E123: Argenx Clinical Trial on Post-COVID POTS

Registration is currently open for a clinical trial on post-COVID POTS investigating a new medication that might deplete autoantibodies and decrease POTS symptoms.This is an exciting development for t...

11 Maalis 202353min

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