Addressing epilepsy stigma from the ground up: Mary Secco

Addressing epilepsy stigma from the ground up: Mary Secco

Send comments and feedback Stigmatizing people with epilepsy is a form of discrimination, and it can affect all aspects of someone's life: school, family life, work, friendships, relationships, and marriage. The International Bureau for Epilepsy (IBE), ILAE's partner organization, consulted people with epilepsy and their families to produce a toolkit for addressing epilepsy stigma in Africa. The materials provide concrete, practical ways that advocates can work to reduce stigma in African co...

Jaksot(103)

Autoimmune-associated epilepsy: Dr. Claude Steriade - encore episode (2022)

Autoimmune-associated epilepsy: Dr. Claude Steriade - encore episode (2022)

Send comments and feedback What is autoimmune-associated epilepsy, and how is it different from acute seizures with an autoimmune cause? How can clinicians best diagnose and treat these conditions? Sh...

23 Huhti 31min

Sleep and epilepsy: Dr. Birgit Frauscher - encore episode (2023)

Sleep and epilepsy: Dr. Birgit Frauscher - encore episode (2023)

Send comments and feedback Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are s...

31 Maalis 29min

Seizure action plans as educational tools: Dr. Lucretia Long - encore episode (2024)

Seizure action plans as educational tools: Dr. Lucretia Long - encore episode (2024)

Send comments and feedback Seizure action plans can help people with epilepsy manage their seizures and address emergencies. They often are aimed at a subset of people with epilepsy, particularly chil...

10 Maalis 21min

ILAE Updated seizure classification Part 2: Prof. Eugen Trinka

ILAE Updated seizure classification Part 2: Prof. Eugen Trinka

Send comments and feedback We discuss the response to the updated classification of seizures with Prof. Eugen Trinka, including why the changes were made and how the changes are being explained and so...

16 Helmi 23min

"Living with epilepsy should not be a secret": Jessie Nyirenda - encore episode (2022)

"Living with epilepsy should not be a secret": Jessie Nyirenda - encore episode (2022)

Send comments and feedback Celebrating International Epilepsy Day (Feb 9) with an episode of strength and hope! Jessie Nyirenda's seizures went undiagnosed for years. She was told she was misbehaving,...

9 Helmi 13min

EpiCARE: The European Reference Network for Rare and Complex Epilepsies

EpiCARE: The European Reference Network for Rare and Complex Epilepsies

Send comments and feedback A network of more than 60 expert epilepsy teams across Europe: That's EpiCARE. The network aims to improve care for rare and complex epilepsies and reduce inequalities in ac...

2 Helmi 30min

Intellectual disability and epilepsy: A patient-centered perspective

Intellectual disability and epilepsy: A patient-centered perspective

Send comments and feedback About 1 in 5 people with an intellectual disability (ID) also have epilepsy; among those with profound ID, 1 in 2 also will have epilepsy. In general, people with an ID have...

19 Tammi 23min

Acute symptomatic seizures: Dr. Marian Galovic

Acute symptomatic seizures: Dr. Marian Galovic

Send comments and feedback While as many as 1 in 3 first seizures are acute symptomatic seizures, these seizures receive relatively little attention during training. Dr. Ching Soong Khoo speaks with D...

5 Tammi 27min

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