Albinism Life podcast

Albinism Life podcast

Welcome to Albinism Life! Brought to you by the Albinism Fellowship, this podcast dives into all things albinism-related. Hosted by Kristina Venning Rose, co-chair of the charity, we’re here to celebrate the highs, acknowledge the challenges, and share incredible stories from our community. Join us as we explore personal journeys, hear from medics about the latest in research, vision, and genetics, and give a voice to everyone in our amazing community. If you’d like to get involved or share your story, we’d love to hear from you! Drop us an email at info@albinism.org.uk.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(19)

Albinism Life growing up in Nigeria as a black person with albinism

Albinism Life growing up in Nigeria as a black person with albinism

Teejay was born in Lagos, Nigeria, before moving to the UK to study. In this episode, he talks openly about growing up with albinism in Nigeria, adapting to life in the UK, and his determination to...

27 Syys 22min

Albinism Life - Travelling with albinism and a visual impairment

Albinism Life - Travelling with albinism and a visual impairment

In this episode of Albinism Life, we talk to Emma about travel as a young person with albinism and low vision. Emma talks openly about some of the challenges she has faced — not just the practical ...

27 Syys 35min

Albinism Life - Naseem building a life as an Asian person with albinism in the UK

Albinism Life - Naseem building a life as an Asian person with albinism in the UK

In this episode, we hear Naseem’s extraordinary story. Born into the world’s largest family of people with albinism, Naseem talks openly about growing up with albinism, her family and the cultural ...

27 Syys 29min

Emma - albinism and travel as a young person

Emma - albinism and travel as a young person

Join Emma as she shares her story of travel as a young person with albinism and low vision. In this warm and honest conversation, she talks about navigating social situations, deciding when and how to...

27 Syys 35min

Naseem - albinism in an Asian culture in UK

Naseem - albinism in an Asian culture in UK

In this episode, we hear Naseem’s extraordinary story. Born into the world’s largest family of people with albinism, as recognised by Guinness World Records, she shares what it was like growing up in ...

27 Syys 29min

Teejay - Albinism in UK as a black person

Teejay - Albinism in UK as a black person

Teejay was born in Lagos, Nigeria, before moving to the UK to study. In this episode, he talks openly about growing up with albinism in Nigeria, adapting to life in the UK, and his determination to ma...

27 Syys 22min

Albinism 101 -  The basics of albinism

Albinism 101 - The basics of albinism

Kristina Venning Rose sits down with Dr Jay Self, Paediatric ophthalmologist, and leading Albinism expert from Southampton UK. He explains the basics of albinism in an easy-to-understand way.

17 Tammi 202519min

Albinism Life “Blending  in at the opera”.

Albinism Life “Blending in at the opera”.

Luke has albinism and chats to Kristina Venning Rose about his experiences growing up, looking different, accepting himself and having an amazing career designing cruise ships which takes him all a...

17 Tammi 202536min

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