Navigating Infant Loss: Julie & Carson’s Story of Love, Loss & Advocacy for Baby Ellie

Navigating Infant Loss: Julie & Carson’s Story of Love, Loss & Advocacy for Baby Ellie

In this emotional episode of Healing After Infant Loss, I sit down with Julie and Carson as they share the heart-wrenching story of their baby girl, Ellie. Born at 35 weeks, Ellie spent 16 days in the NICU before being diagnosed with a rare genetic condition, Progeria. Despite their unimaginable loss, Julie and Carson found strength in advocating for Ellie’s care, cherishing every moment, and now sharing their story to help others.


🔗 Read the Blog Post: https://healingafterinfantloss.com/un...

🔗 Read the Bonus Blog Post: https://healingafterinfantloss.com/ho...

🔗 Read Julie & Carson's story: https://healingafterinfantloss.com/ju...


In this episode, we discuss:

• Their pregnancy journey and NICU experience.

• Receiving a terminal diagnosis and preparing for loss.

• Advocating for Ellie’s medical care and comfort.

• Coping with grief and finding ways to honour Ellie’s memory.


Julie & Carson's Instagram Page: / notsonormalparents

Links:

💛 Visit our website: https://healingafterinfantloss.com

🧡 Read stories & submit your own: https://healingafterinfantloss.com/stories

🩷 Instagram: https://www.instagram.com/healingafterinfantloss

💜 TikTok: https://www.tiktok.com/@healingafterinfantloss

💙 YouTube: https://www.youtube.com/channel/UCeT6A_CoQ_9Sdmtzea8I9yQ

💰 Donate to our fundraising here: https://healingafterinfantloss.com/fundraising

📧 Email me: rosie@healingafterinfantloss.com


Join our community and let’s walk this path together.


Disclaimer: Some of the links may be affiliate links. This means that if you click on the link and make a purchase, I may receive a small commission at no additional cost to you. Thank you for supporting Healing After Infant Loss and helping to keep this platform going!


With love and compassion,

Rosie x

Episoder(36)

Stillbirth at 31 Weeks, Miscarriage Without Knowing and Pregnancy After Loss. Roisin’s Story

Stillbirth at 31 Weeks, Miscarriage Without Knowing and Pregnancy After Loss. Roisin’s Story

In this video, Roisin shares her deeply personal journey through stillbirth, pregnancy after loss and a miscarriage she didn’t know was happening until it was already underway.🔗 Read the Story Blog P...

23 Nov 20251h 21min

Therapy, Journaling & Crafting After Infant Loss with Tavinder. Healing Tools for Grief.

Therapy, Journaling & Crafting After Infant Loss with Tavinder. Healing Tools for Grief.

In this conversation, I talk with writer and advocate Tavinder about healing after infant loss and infertility. We cover the power of therapy, how couples can communicate differently in grief, getting...

9 Nov 20251h 5min

7 Years of IVF, Loss & Hope: Ana’s Journey to Motherhood After Infertility

7 Years of IVF, Loss & Hope: Ana’s Journey to Motherhood After Infertility

In this video, Ana shares her deeply personal story of infertility, ectopic pregnancy, multiple failed IVF cycles, and ultimately the joy of welcoming her son after years of loss and perseverance.🔗 R...

26 Okt 20251h 23min

1 Year of Healing After Infant Loss: Reflections, Lessons & The Road Ahead

1 Year of Healing After Infant Loss: Reflections, Lessons & The Road Ahead

It’s been one year since I launched Healing After Infant Loss. In this behind-the-scenes episode, I share the journey of building this platform from the ground up. From starting a YouTube channel and ...

12 Okt 202525min

Rebuilding My Life After Miscarriage, TFMR & Baby Loss. Infant Loss Felt Like an Earthquake

Rebuilding My Life After Miscarriage, TFMR & Baby Loss. Infant Loss Felt Like an Earthquake

How do you explain infant loss to someone who hasn’t been through it?In this episode, I share a powerful metaphor that has been on my heart: infant loss feels like an earthquake. The foundations of yo...

28 Sep 20259min

How to Change Jobs While TTC. Career & Infertility Support After Infant Loss with Alice

How to Change Jobs While TTC. Career & Infertility Support After Infant Loss with Alice

In this episode, Alice returns to share her powerful story of navigating infertility, recurrent miscarriage and IVF all while making bold career moves. She opens up about the challenges of changing jo...

14 Sep 202533min

Cancer, Chemo, Fibroids, Adenomyosis, IVF & Hysterectomy: Tavinder’s Journey to being Childless

Cancer, Chemo, Fibroids, Adenomyosis, IVF & Hysterectomy: Tavinder’s Journey to being Childless

In this episode, Tavinder shares her powerful story of resilience through unimaginable challenges. From her husband’s testicular cancer to her own diagnosis with triple negative breast cancer, years o...

31 Aug 20251h 39min

15 Life Lessons I Learned After Infant Loss (Body Image, Friendships, Human Connection & More)

15 Life Lessons I Learned After Infant Loss (Body Image, Friendships, Human Connection & More)

In this episode, I’m sharing 15 things I’ve learned after going through infant loss. The lessons that changed how I see life, love, my body, friendships, grief, and happiness. I’ve experienced two mis...

17 Aug 202525min

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