#25 - Adult with XXY and Wife - Ryan and Leah Kuieck

Ryan is the president and founder of California-based non-profit Living with XXY. Ryan is a 37-year-old with Klinefelter syndrome or 47, XXY. Klinefelter syndrome results from an extra X chromosome, a...

19 Mar 202439min

Brittany is the mother of a 4 1/2-year-old boy named Callan. Their son was experiencing bloody noses at a young age. After a week in the hospital, Callan was diagnosed with Aplastic anemia, which is a...

7 Mar 202432min

Kelly Stine is the mother to Connor, who is 17, a senior in high school. Connor encourages other boys his age to share their stories and help build a community for teenagers with XXY. Connor loves to ...

9 Jan 20241h 21min

Carson Blake shares with us about her son Louden, who is now four years old and has been in Early Intervention since he was six months old. Carson talks about why EI has been super helpful for her son...

26 Des 202343min

Anne Price had an NIPT screening due to her age of 41. One week later, while their family was on vacation with their two older kids, Anne received a call while waiting for the Finding Nemo ride at Epc...

12 Des 202352min

Colleen Sander's son, Jackson, was born at 29 weeks and wasn't speaking at the age of two. Once Jackson started school, he was given speech therapy, and over time, something didn't seem right for Coll...

28 Nov 20231h 12min

Jessica Henderson's journey to diagnosis started with her firstborn son, Clay, who is now 18. When Clay was two, Jessica's Grandmother offered to pay for speech therapy. School started to become chall...

14 Nov 20231h 5min

Michael Bush is the father to Carson, an 18-year-old diagnosed with XXY at 15, and together, they want to inspire other young men and their parents to do a podcast. Carson shares his story, from being...

31 Okt 202351min