1.03 Barriers to Diagnosis and Care

1.03 Barriers to Diagnosis and Care

In this episode we discuss the barriers you may come across during your diagnostic journey and understanding the cause of your hypermobility disorder. Some of these barriers are more internal, while others are external to you, therefore making them even more difficult to address.

Part 1 - Luna and Shelli discuss the internal and external barriers

Parts 2 & 3 - Luna and Shelli share the accommodations and hacks they use to make sure they are practicing regular self-care.

Episoder(43)

3.14 A Conversation With Dr. Akilah Cadet

3.14 A Conversation With Dr. Akilah Cadet

Dr. Akilah Cadet is the founder and CEO of Change Cadet, an organizational development consulting firm. As a Forbes Next 1000 entrepreneur, her work is behind some of the biggest brands that you use e...

1 Aug 202559min

3.13 July is Disability Pride Month

3.13 July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Jul 202539min

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Jul 20251h 21min

3.11 A Conversation With Movement Therapist Jeannie Di Bon

3.11 A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Jul 20251h 16min

3.10 Help I'm Alive: I is for Intersectionality

3.10 Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the c...

21 Jun 202534min

3.9 Help, I'm alive: H is for Hand Surgery

3.9 Help, I'm alive: H is for Hand Surgery

In this episode, Tiffany warns about having surgery on both hands on the same day.

7 Jun 202527min

3.8 Help, I'm Alive: G is for Good Vibrations

3.8 Help, I'm Alive: G is for Good Vibrations

Does anyone actually read these descriptions? If you're reading this, not on podcast staff, and have the spoons, leave us a review or comment and tell us about this silly episode description!

24 Mai 202540min

3.7 Help, I'm Alive: F is for Fuuuuuuuu

3.7 Help, I'm Alive: F is for Fuuuuuuuu

Oopsie!Shelli's YouTube

26 Apr 202538min

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