1.07 A Conversation with a Late Diagnosed Woman, Interview 1

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

A Conversation with a Late Diagnosed Woman, Interview 1

Summary:

Join us for a more casual conversation to get to know your hosts of the Hacking Hypermobility Podcast. Luna and Shelli sit down to talk about their own experiences with neurodivergence.

Resources and References:
  1. “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms/23154-neurodivergent
  2. Csecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Themelis K, Mathias CJ, Critchley HD, Eccles JA. Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain. Front Psychiatry. 2022 Feb 2;12:786916. doi: 10.3389/fpsyt.2021.786916. PMID: 35185636; PMCID: PMC8847158. https://pubmed.ncbi.nlm.nih.gov/35185636/
  3. Glans MR, Thelin N, Humble MB, Elwin M, Bejerot S. The Relationship Between Generalised Joint Hypermobility and Autism Spectrum Disorder in Adults: A Large, Cross-Sectional, Case Control Comparison. Front Psychiatry. 2022 Feb 8;12:803334. doi: 10.3389/fpsyt.2021.803334. PMID: 35211037; PMCID: PMC8861852. https://pubmed.ncbi.nlm.nih.gov/35211037/
  4. Glans M, Thelin N, Humble MB, Elwin M, Bejerot S. Association between adult attention-deficit hyperactivity disorder and generalised joint hypermobility: A cross-sectional case control comparison. J Psychiatr Res. 2021 Nov;143:334-340. doi: 10.1016/j.jpsychires.2021.07.006. Epub 2021 Jul 5. PMID: 34560594. https://pubmed.ncbi.nlm.nih.gov/34560594/
  5. Zoccante L, Ciceri ML, Gozzi LA, Gennaro GD, Zerman N. The "Connectivome Theory": A New Model to Understand Autism Spectrum Disorders. Front Psychiatry. 2022 Feb 7;12:794516. doi: 10.3389/fpsyt.2021.794516. PMID: 35250650; PMCID: PMC8892379. https://pubmed.ncbi.nlm.nih.gov/35250650/ , https://www.frontiersin.org/articles/10.3389/fpsyt.2021.794516/full
  6. Norris Labs EDS Resources: https://www.thenorrislab.com/research/ehlers-danlos-syndrome/eds-resources
  7. Harvey Blume, "Neurodiversity: On the neurological underpinnings of geekdom" The Atlantic, September 1998. https://web.mit.edu/comm-forum/legacy/papers/blume.html https://www.theatlantic.com/magazine/archive/1998/09/neurodiversity/305909/
  8. An interview with Judy Singer: http://www.myspectrumsuite.com/meet-judy-singer/
  9. Sonny Jane Wise' website with helpful infographics and resources "The Lived Experience Educator" https://livedexperienceeducator.com/freestuff, TikTok: https://www.tiktok.com/@livedexperienceeducator?_t=8YHZdr0g03a&_r=1
  10. Essay by Ketil Slagstad, "Asperger, the Nazis and the children – the history of the birth of a diagnosis" https://tidsskriftet.no/en/2019/05/essay/asperger-nazis-and-children-history-birth-diagnosis
  11. The Curable App: https://www.curablehealth.com/

Episoder(43)

3.14 A Conversation With Dr. Akilah Cadet

3.14 A Conversation With Dr. Akilah Cadet

Notes are coming!

1 Aug 202559min

3.13 July is Disability Pride Month

3.13 July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Jul 202539min

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

3.12 A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Jul 20251h 21min

3.11 A Conversation With Movement Therapist Jeannie Di Bon

3.11 A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Jul 20251h 16min

3.10 Help I'm Alive: I is for Intersectionality

3.10 Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the c...

21 Jun 202534min

3.9 Help, I'm alive: H is for Hand Surgery

3.9 Help, I'm alive: H is for Hand Surgery

In this episode, Tiffany warns about having surgery on both hands on the same day.

7 Jun 202527min

3.8 Help, I'm Alive: G is for Good Vibrations

3.8 Help, I'm Alive: G is for Good Vibrations

Does anyone actually read these descriptions? If you're reading this, not on podcast staff, and have the spoons, leave us a review or comment and tell us about this silly episode description!

24 Mai 202540min

3.7 Help, I'm Alive: F is for Fuuuuuuuu

3.7 Help, I'm Alive: F is for Fuuuuuuuu

Oopsie!Shelli's YouTube

26 Apr 202538min

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