Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments

Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Cure SMA booklet which outlines the possible risks and benefits of combining treatments for Spinal Muscular Atrophy (SMA). Also, several topics are being hashed over on the forums. Among them include breaking in a new wheelchair, frustrations with bureaucratic red tape, reflecting on being homebound for the last year, finding a new PCP and of course the ever popular topic of Evrysdi. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

Episoder(444)

#157: Delphine Andrews - Life coach and disability advocate with SMA

#157: Delphine Andrews - Life coach and disability advocate with SMA

In episode 157, host Kevin Schaefer talks with Delphine Andrews from Durham, North Carolina. Delphine is a life coach and disability advocate living with SMA. She talks with Kevin about her journey to...

13 Apr 30min

#156: Maylan Chavez and Sory Rivera: Friends and podcast hosts with SMA

#156: Maylan Chavez and Sory Rivera: Friends and podcast hosts with SMA

In episode 156, host Kevin Schaefer talks with Maylan Chavez and Sory Rivera, two friends with SMA who host the “Access Granted” podcast together. Maylan is from Hialeah, Florida, and Sory is from Tyl...

16 Feb 53min

#155: Jasmine Jackson, digital creator and mother with SMA

#155: Jasmine Jackson, digital creator and mother with SMA

In episode 155, host Kevin Schaefer talks with Jasmine Jackson from Vancouver, Washington. Jasmine is a development and marketing manager, digital creator, and also a mother living with SMA type II. S...

19 Des 202540min

#154: Coach Damon Vincent, adaptive fitness specialist

#154: Coach Damon Vincent, adaptive fitness specialist

In episode 154, host Kevin Schaefer talks with Coach Damon Vincent from Lafayette, Louisiana. Damon is an adaptive fitness specialist who works with clients with various rare diseases and disabilities...

17 Nov 202535min

#153: Annie Heathcote, Entrepreneur and Speaker with SMA

#153: Annie Heathcote, Entrepreneur and Speaker with SMA

In episode 153, host Kevin Schaefer talks with Annie Heathcote from Mazomanie, Wisconsin. Annie is a multi-business owner, social media influencer, author, and lifelong disability advocate whose life ...

25 Sep 202530min

#152: Kamil Goungor, Disability activist

#152: Kamil Goungor, Disability activist

In episode 152, host Kevin Schaefer talks with Kamil Goungor from Athens, Greece. Kamil, who has SMA type II, works for the European Network on Independent Living and is the co-founder and chair of th...

28 Aug 202545min

#151: Anton Paras, marketing executive in digital health

#151: Anton Paras, marketing executive in digital health

In episode 151, host Kevin Schaefer talks with his colleague, Anton Paras. Anton is a marketing executive for Bionews Inc., the publisher of SMA News Today, and he lives in the Bay Area, California. R...

30 Jul 202536min

#150: Jenna and Tanya Vega share their love story

#150: Jenna and Tanya Vega share their love story

In episode 150, host Kevin Schaefer talks with Jenna and Tanya Vega from Palm Springs, California. Jenna and Tanya discuss their seven years together, navigating daily life with SMA, and their wedding...

1 Jul 202528min

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