Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!
CAH PULSE7 Jan 2025

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing things like swallowing medication in pill form and being the happiest joyful baby Abby could have hoped for. However, not everything with baby Nash is status quo. Yes, although proving to be challenging, his family is managing his CAH quite well. Except for one night when her husband was out of town, Abby was faced with what to do when baby Nash was throwing up uncontrollably and turned a shade of white she had never seen before. What unfolds next is a learning experience every new parent who has a baby living with CAH should hear. In this episode, Abby tells her frightening story about what she was sure was her baby’s first adrenal crisis. From her NASCAR ride to the hospital, to telling her 7 month old not to be so dramatic during a blood draw, to finally explaining emphatically to the doctors what she knows her baby needs, Abby is a true crusader as a new CAH mom. Her super power has been learning as she goes from a group of doctors and advocates but above all, she realizes she is learning the most from her own experiences, understanding what works best for her child on his life-long journey with CAH.

Avsnitt(20)

Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

Season 3 | Episode 2: Lupe and Christina: Raising a CAH Superstar

When Lupe’s daughter Christina was born, everything changed in an instant. After a difficult pregnancy and an unexpected diagnosis of CAH, Lupe found herself navigating a condition she had never heard...

14 Mars 30min

Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

Season 3 I Episode 1: Karter - "You gotta just do it" - Insights Positivity and Advice from a Seventeen-Year-Old Salt Waster

In this uplifting episode of CAH Pulse, Stephanie and Dina talk with the unflappable 17-year-old Karter, who shares his experiences as a high school student-athlete living with salt-wasting CAH. Karte...

23 Feb 35min

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the differences between sa...

30 Jan 30min

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences for a rare behind-the-sc...

2 Dec 202538min

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a todd...

17 Okt 202538min

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

In this touching episode, Stephanie and Dina speak to Kristina, a young mom to 2 little girls who's younger daughter lives with salt wasting CAH. Kristina recalls her journey from giving birth to Fran...

3 Sep 202542min

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and girls), parents and adult...

25 Juni 202538min

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born.  His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he seemed to breeze through ...

17 Apr 202534min

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