Episode 5 - A New Extraordinary

Episode 5 - A New Extraordinary

In this inspiring episode, Geralyn Spiesz, OT and founder of the Down Syndrome Action Plan, shares her journey from a Down syndrome diagnosis of her child in 2007 to becoming an advocate for brain-based, individualized support for children with Down syndrome. Drawing from her work as an occupational therapist and her personal experience as a mom, Geralyn breaks down the powerful, neurodevelopmental methods that helped her son—and many others—thrive.

Highlights include:

• (1:20) Why traditional therapies felt limiting—and what Geralyn did differently

• (9:40) How a simple log roll (13:17) and other movements can help reflexes and the brain’s incredible potential for growth

• (13:45) Why crawling and trunk rotation are musts for brain development

• (18:00) Stubborn vs. Independent - motivating and encouraging learning

• (22:53) Rethinking reading, testing, and school: challenges and strategies to tailor learning to your child

• (33:04) Geralyn talks about the successes and challenges for her high school son.

Plus, hear powerful stories about other parents who’ve challenged conventional thinking and seen their children flourish. The episode concludes with a powerful reminder: with love, creativity, and trust in the learning process, children with Down syndrome can achieve remarkable things.

Resources:

Geralyn's FB group - dsactionplan.com

Geralyn's book - Redefining the Reality of Down Syndrome: The Power of an Integrative Mindset

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Episode 15 - Gigi's Playhouse

Episode 15 - Gigi's Playhouse

In our newest episode, Antonella Signori of GiGi’s Playhouse Houston shares how this incredible nonprofit is empowering individuals with Down syndrome through free programs—from infancy through adulth...

21 Jan 26min

Episode 15 - Gigi's Playhouse Trailer

Episode 15 - Gigi's Playhouse Trailer

Check out our latest episode where we talk about all things Gigi's Playhouse. Locations for Gigi's Playhouse are all over the country and it's a fantastic resource for families who have loved ones wit...

21 Jan 28s

Episode 14 FULL - Living in the "And" with Jillian Benfield

Episode 14 FULL - Living in the "And" with Jillian Benfield

In this powerful episode of Down Syndrome: 21st Perspectives, hosts Anne Lewis and Leigh Frillici speak with journalist and author Jillian Benfield about her newest book Overwhelmed and Grateful as we...

3 Dec 202534min

Episode 14 Trailer - On Living in the "And" - Author Jillian Benfield

Episode 14 Trailer - On Living in the "And" - Author Jillian Benfield

Former TV journalist Jillian Benfield joins Anne Lewis and Leigh Frillici to share her powerful story of raising a child with Down Syndrome. Jillian opens up about her journey from grief to gratitude,...

3 Dec 202531s

Episode 13 Sneak Peak - Empowering Kids with IDD to Dance

Episode 13 Sneak Peak - Empowering Kids with IDD to Dance

New Episode Alert! Empowering Kids with IDD to Dance - Cammie O'Hara shares the joy of teaching her students with IDD how to dance and how her Empower Dance Group performs at some big venues! No matte...

13 Nov 202540s

Episode 13 - Empowering Dancers One Step at a Time

Episode 13 - Empowering Dancers One Step at a Time

In this uplifting episode of Down Syndrome: 21st Perspectives, hosts Monique Johnson and Leigh Frillici welcome Cammie O’Hara, owner of The Dance Pointe, a studio dedicated to providing inclusive danc...

13 Nov 202519min

Episode 12 - The Journey to Adoption and Advocacy

Episode 12 - The Journey to Adoption and Advocacy

In this episode of Down Syndrome: 21st Perspectives, we talk with Carly Durham—nurse practitioner, client care manager, and mom of three, including two children with Down syndrome. Carly shares her fa...

3 Okt 202540min

Episode 12 Trailer - A Journey from Adoption to Advocacy

Episode 12 Trailer - A Journey from Adoption to Advocacy

On this episode of Down Syndrome 21st Perspectives, Carly Durham shares her journey from adopting a child with Down Syndrome from Ukraine to their experiences navigating complex medical needs, and her...

3 Okt 202539s

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