S2 Episode 6 (Part A): Sitting Amongst the Mess, Chaos, and Care: Creative Advocacy with Youth Cancer

Disclaimer: This episode discusses people’s perspectives of their lived experiences with cancer. This is a sensitive topic, please listen at your discretion.

Transcript: https://docs.google.com/document/d/1p3PDg14mvtkZZ--YYP40lK9n2UpsXUmX/edit?usp=sharing&ouid=100719681595597138502&rtpof=true&sd=true

In this episode, Aliona and Sally, two passionate social work students and cancer survivors, enlighten our listeners on how young people (18-25) living with cancer experience creative advocacy. Both Aliona and Sally speak from their lived experience, highlighting social workers' vital role for people living with cancer, through group advocacy and individual supports. They recognise social workers as an essential support system and a shoulder to cry on during the harsh and painful treatments. This came at a time when they were formulating their identities and discovering themselves. Sally gives an example of a Virtual Reality experience run by the Chimera Foundation, which allowed them to escape the hospital environment without breaking ‘hospital protocol’ and even allowed Aliona and her brother to 'return' to their home country during the Covid pandemic.

References/Resources

• Chimera Legacy Foundation https://chimeralegacyfoundation.org.au/

• The Queensland Youth Advisory Group (YAG) https://www.childrens.health.qld.gov.au/chq/our-services/queensland-youth-cancer-service/the-queensland-youth-advisory-group-yag/

• Sony Foundation Australia https://www.sonyfoundation.org/who-we-are - need more info

• Perez, G. K., Salsman, J. M., Fladeboe, K., Kirchhoff, A. C., Park, E. R., & Rosenberg, A. R. (2020). Taboo Topics in Adolescent and Young Adult Oncology: Strategies for Managing Challenging but Important Conversations Central to Adolescent and Young Adult Cancer Survivorship. American Society of Clinical Oncology Educational Book, (40), 1–e185. https://doi.org/10.1200/EDBK_279787

Keywords: Hospital social work, cancer, cancer survivor, Chimera Foundation, Virtual Reality, Youth Advisory Group (YAG), youth advocacy, support, connection, lived/living experience

Music by Boe Toweh

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