Catching up with Gary Linehan: Living with PV and his Next Big Adventure
On this episode of the MPN Pod, hosts Kay and Josh welcome back fan-favorite guest Gary Linehan, a 56-year-old educator and avid hiker living with polycythemia vera, for an update on his journey since...
8 Apr 21min
A Young Patient's Journey: Balancing Career and Polycythemia Vera
In this season three premiere of the MPN Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg interview Dr. Tyler Parsons, a postdoctoral researcher at Washington University who studies myel...
4 Mars 25min
A 2025 Year in Review for Polycythemia Vera
The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, an...
21 Jan 25min
Self-Empowerment & Polycythemia Vera
On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocac...
10 Dec 202528min
Managing Your PV and Mental Health
On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by peo...
24 Sep 202529min
Self Advocacy in Polycythemia Vera: A Patient's Perspective
On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her ex...
20 Aug 202524min
Shared Decision Making in Polycythemia Vera
On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia Masarova from MD Anderson...
16 Juli 202529min
Talking to Friends & Family about PV
On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven discusses the challenges...
11 Juni 202533min
