Jace on health policy, why “being a burden is a blessing”, and much more
The POTScast2 Joulu 2025

Jace on health policy, why “being a burden is a blessing”, and much more

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Jaksot(250)

E86: Jamie Lynn from Kentucky

E86: Jamie Lynn from Kentucky

It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can ...

13 Syys 202227min

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can y...

6 Syys 202240min

E84: Stephanie w 3 concussions and POTS from MD

E84: Stephanie w 3 concussions and POTS from MD

Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several yea...

3 Syys 202236min

E83: Maddie and her therapy dog from Michigan

E83: Maddie and her therapy dog from Michigan

Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great ...

30 Elo 202232min

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fe...

23 Elo 202235min

E81: Katherine from Pennsylvania

E81: Katherine from Pennsylvania

Katherine developed POTS secondary to Lyme disease after a tick bite, causing her to complete her senior year of high school online. When at her sickest, she re-connected with the man she would marry....

20 Elo 202234min

E80: Mary Katherine Stratton from Mississippi

E80: Mary Katherine Stratton from Mississippi

Mary Katherine has developed POTS twice - first as a teen and again after COVID. Her PICC line to get intravenous fluids made lifting heavy objects impossible, especially for a cattle breeder who love...

16 Elo 202229min

E79: Employment Resources for the Chronically Ill with Chronically Capable CEO and co-Founder Hannah Olson

E79: Employment Resources for the Chronically Ill with Chronically Capable CEO and co-Founder Hannah Olson

Hannah has Lyme and POTS, and after working for others for a few years founded her own company - Chronically Capable. Featured by the Wall Street Journal and Forbes magazine, her company matches chron...

9 Elo 202233min

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