Season 1 | Episode 1: Connections - You Are Not Alone
CAH PULSE13 Marras 2023

Season 1 | Episode 1: Connections - You Are Not Alone

Connecting with someone who knows your fears and challenges is a crusade Dina Matos, Executive Director of Cares Foundation and Stephanie Erb, long time career actress, advocate and mom of a grown child with Congenital Adrenal Hyperplasia have been on together. They bring us this compelling first episode of CAH Pulse, a podcast born and bred to educate, connect and give hope to those living with this challenging rare condition. Here Stephanie tells her shocking story of adopting a child at birth with CAH, a rare genetic disease, and becoming a strong advocate for others with the condition and Dina who explains after hearing a parent ask "how long is my child going to live?" one too many times, exactly why she has such heartfelt dedication to helping those living with CAH. After hearing Dina and Stephanie's introduction, you will be left with a world of hope for these patients as well as the message that a CAH child can indeed live a full, typical and beautiful life. Join Dina and Stephanie on their first of many conversations to illuminate the value of this incredible CAH village and how there is always room for more to come along for the ride.

Jaksot(18)

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing...

7 Tammi 202531min

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to consider now that he is...

29 Loka 202437min

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little unde...

3 Syys 202438min

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent him from vomiting all...

17 Touko 202437min

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Welcome to another astonishing CAH story.  In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into ...

28 Maalis 202438min

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm hearted, outspoken young woma...

28 Helmi 202437min

Season 1 | Episode 4: Trust Yourself - College Life with CAH

Season 1 | Episode 4: Trust Yourself - College Life with CAH

There are varying degrees of fear that parents experience while raising a child with CAH. These fears are often from the challenges of medicating their child properly to ensure their safety from a loo...

30 Tammi 202433min

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Despite her difficult journey, Lesley, who grew up in a children's home in England, continues her explanation of how she moved to the states and got the help she needed after living most of her life n...

19 Joulu 202328min

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