Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"
CAH PULSE28 Maalis 2024

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Welcome to another astonishing CAH story. In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into an uncertain world. Not only was her birthday during the height of the COVID-19 pandemic, but their newborn was diagnosed with salt-wasting CAH in a hospital with medical professionals who knew little to nothing about the condition.

David and Brianne open up about their harrowing journey from their daughter's adrenal insufficiency to her atypical genitalia. They explain the hardships of giving birth with COVID-19 protocols, including social distancing and the miscommunication it had caused. They also lament about the hospital staff's position of not recognizing their daughter as a girl with the recommendation that they wait to name their baby.

Join Stephanie and Dina as they uncover the shocking lack of understanding, empathy and support this resilient family endured in their 3rd trimester of pregnancy through the first weeks of their precious baby's life.

Jaksot(18)

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

Season 2 I Episode 12: Non-Classical CAH - Fertility Treatment and the Importance of Genetic Testing

In this final episode of Season 2 - Stephanie and Dina are joined by leading CAH experts, Drs. Witchel and Auchus. This episode was made to provide a deeper understanding of the differences between sa...

30 Tammi 30min

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

Season 2 l Episode 11: Dimitri: The Long Game of Drug Discovery

In this episode of CAH Pulse, host Stephanie Erb and CARES Foundation director Dina Matos sit down with distinguished scholar Dr. Dimitri Grigoriadis of Neurocrine Biosciences for a rare behind-the-sc...

2 Joulu 202538min

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a todd...

17 Loka 202538min

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

Season 2 | Episode 9: Kristina: "We're going to call your baby...'Baby'" - Removing the Stigma from CAH

In this touching episode, Stephanie and Dina speak to Kristina, a young mom to 2 little girls who's younger daughter lives with salt wasting CAH. Kristina recalls her journey from giving birth to Fran...

3 Syys 202542min

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

Season 2 | Episode 8: Lesley and Louise: No Shame! Putting an End to the Secrecy of CAH

In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and girls), parents and adult...

25 Kesä 202538min

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

Season 2 | Episode 7: "Go Live Your Life as Normally as Possible" But...Nothing About CAH is Normal

In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born.  His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he seemed to breeze through ...

17 Huhti 202534min

Season 2 | Episode 6: Dr Su: Words of Wisdom: Clearing up the Confusion of Stress Dosing

Season 2 | Episode 6: Dr Su: Words of Wisdom: Clearing up the Confusion of Stress Dosing

In this masterfully eye-opening episode, Stephanie and Dina pick the brilliant mind of CARES Foundation's Medical Director, and Professor & Pediatric Endocrinologist at the NY Presbyterian Weill Corne...

5 Maalis 202532min

Season 2 | Episode 5: Raelie: CAH Does Not Define THIS Ten Year Old!

Season 2 | Episode 5: Raelie: CAH Does Not Define THIS Ten Year Old!

Is ten-year-old Raelie unphased by her CAH? Find out in this important episode of CAH Pulse where Stephanie and Dina speak with Amanda and her strong, brave and laid back 5th grade daughter, Raelie. T...

11 Helmi 202535min

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