Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere
CAH PULSE17 Loka 2025

Season 2 l Episode 10: Brittany: Demanding Change After a Lack of Answers and Getting Nowhere

In this uplifting episode, Stephanie and Dina speak to Brittany, an outspoken 29-year-old living with CAH. A self described "open book", Brittany shares her life's journey from her diagnosis as a toddler, thanks to her mother's intuition and advocacy, to her drive to find a cure for CAH. Along the way Brittany reveals she has suffered from weight gain, severe acne and even a femoral stress fracture. Her path also includes a life changing moment after meeting others for the first time who are also living with CAH, with help from CARES. Brittany's collective experiences have inspired her to make a difference in the CAH community by helping to connect others. She makes clear her inclination that there be more research, more mental health understanding and awareness, to eradicate the use of steroids and to finally find a cure. Oh, and don't forget the donuts...

Jaksot(18)

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing...

7 Tammi 202531min

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to consider now that he is...

29 Loka 202437min

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little unde...

3 Syys 202438min

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent him from vomiting all...

17 Touko 202437min

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Welcome to another astonishing CAH story.  In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into ...

28 Maalis 202438min

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm hearted, outspoken young woma...

28 Helmi 202437min

Season 1 | Episode 4: Trust Yourself - College Life with CAH

Season 1 | Episode 4: Trust Yourself - College Life with CAH

There are varying degrees of fear that parents experience while raising a child with CAH. These fears are often from the challenges of medicating their child properly to ensure their safety from a loo...

30 Tammi 202433min

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Despite her difficult journey, Lesley, who grew up in a children's home in England, continues her explanation of how she moved to the states and got the help she needed after living most of her life n...

19 Joulu 202328min

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