My CanaryUK op-ed is out
I AM MADELINE19 Joulu 2025

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

Fb https://www.facebook.com/share/p/1AKdjYyQ72/

Twitter https://x.com/i/status/2002061384209867072

Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


Oh well. Hopefully I'll get a chance to say it in person out of constituency appointment.


Warmest holiday wishes

Marcia AKA Madeline

#MyalgicE #meaction #christmas #longcovid #christmastime

Jaksot(144)

Hope Is Tricky Business

Hope Is Tricky Business

The Atlantic article link expired so here's a new one for you to be able to read (Or listen cuz it has a audio version at the top) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasi...

11 Syys 202533min

Disability Hate(And how I'm trying to keep afloat)

Disability Hate(And how I'm trying to keep afloat)

the link to the Atlantic article in the previous episode expired so here's a new link that lets you read the article https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-...

6 Syys 202518min

Atlantic Readers welcome

Atlantic Readers welcome

The Atlantic article just came out https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-li...

19 Elo 202519min

disability prejudice vomited on me by a neighbour, AGAIN

disability prejudice vomited on me by a neighbour, AGAIN

Not sure why I'm surprised, but same neighbour tried to do it to me again today as I was exiting my apt. I was so tired, my body was in such pain. What the heck. When are we going to start accessibili...

7 Elo 20258min

BANJO!

BANJO!

Where I talk about the fact I have a total thing about banjos, the recent folk festival that I went to and that I've been volunteering for for about 30 years. Also the difficulties and trying to find ...

26 Heinä 202524min

HEAT

HEAT

where I talk about upcoming heat of 30° c and I still do not have a response from the crisis division of this ministry of social development of poverty reduction about a new air conditioner. And one t...

9 Heinä 202529min

Volunteering

Volunteering

purpose in this case volunteering helps me navigate difficulty eg things I've been talking about in the last few episodes

26 Kesä 202523min

Trauma Response

Trauma Response

interesting aha moment i had around my body's reaction to being under such difficulty for so long.

26 Kesä 202510min

Suosittua kategoriassa Yhteiskunta

sita
olipa-kerran-otsikko
ihme-ja-kumma
kaksi-aitia
siita-on-vaikea-puhua
i-dont-like-mondays
uutiscast
poks
gogin-ja-janin-maailmanhistoria
antin-palautepalvelu
kolme-kaannekohtaa
mamma-mia
rss-murhan-anatomia
yopuolen-tarinoita-2
aikalisa
loukussa
meidan-pitais-puhua
rss-palmujen-varjoissa
naakkavalta
ootsa-kuullut-tasta-2