Elizabeth on her comeback and book: The Toll it Took
Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis. After 5 years of struggling to be heard or helped...
22 Maalis 34min
Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti
Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...
17 Maalis 44min
Julie on the lengths she had to go to for recovery
Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR doct...
7 Maalis 45min
Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters
Dr. Dempsey is always looking for new therapies that may help her complex patients. In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the Nanovi...
1 Maalis 47min
Maggie on being both patient and Mental Health Therapist
Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health Thera...
25 Helmi 36min
The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L
Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT. Together they created a wo...
17 Helmi 37min
Dr. Casey Kelley on Mast Cell Matters
Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex ch...
10 Helmi 40min
Sophie on life after severe COVID
Surviving severe COVID was just beginning of Sophie's health adventure. She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped...
3 Helmi 41min
