BONUS Say More LIVE: Rare Diseases aren’t so Rare.
Say More27 Helmi

BONUS Say More LIVE: Rare Diseases aren’t so Rare.

It’s Rare Disease Week! And the Boston Globe held its second annual Rare Disease Summit, shining a spotlight on the 30 million people living with a rare disease in the US. In this BONUS live recording of Say More, we talk to Boston Children’s Hospital head of pediatrics Dr. Wendy Chung about strides in newborn genetic screening, and Bob and Bobby Coughlin, a father and son whose lives have been transformed by a breakthrough cystic fibrosis drug that’s changing the outlook for people with the disease. Email us at saymore@globe.com. To sign up for the Boston Globe Events newsletter, click here.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(173)

RERUN: Before Lindsay Clancy, there was Latarsha Sanders.

RERUN: Before Lindsay Clancy, there was Latarsha Sanders.

What does justice mean when a mentally ill person takes a life? Before Lindsay Clancy killed her three children in Duxbury, there was another case. In 2018, a mother in Brockton, Latarsha Sanders, kil...

20 Elo 28min

Jascha Franklin-Hodge on why Boston Needs Safer Streets

Jascha Franklin-Hodge on why Boston Needs Safer Streets

When Michelle Wu was first elected mayor, she promised to transform Boston’s streets. Her plans for bike lanes and public transit were ambitious but achievable, she said. Now, 5 years later, street sa...

13 Elo 35min

Old People Rule America. It’s Called Gerontocracy.

Old People Rule America. It’s Called Gerontocracy.

America is ruled by old people. And it’s not just our elected officials. Median voting age is well above the national average. Yale University professor Sam Moyn has a word for this: Gerontocracy. Thi...

6 Elo 29min

Who was the First Masshole?

Who was the First Masshole?

Who was the first Masshole? It’s a question that dogged Boston Globe feature writer Billy Baker, resulting in some serious research. This week on Say More, Billy comes on the show with Globe reporter ...

30 Heinä 28min

Politics Panel: What is ICE Doing in Maine?

Politics Panel: What is ICE Doing in Maine?

Maine keeps grabbing national attention. First it was the unexpected rise and fall of economic populist Graham Platner, a serious contender for Maine’s senate seat. Now begins the race to find a new n...

23 Heinä 34min

PATRIOTISM IS A VERB: Teaching US History to Immigrant Kids

PATRIOTISM IS A VERB: Teaching US History to Immigrant Kids

Chelsea High School in Massachusetts is around 90 percent Latino, and the city has been ground zero for ICE raids in the Boston area. On the 250th anniversary of America’s founding, we wanted to know ...

15 Heinä 23min

PATRIOTISM IS A VERB: Rep. Ayanna Pressley is an a ‘situationship’ with America

PATRIOTISM IS A VERB: Rep. Ayanna Pressley is an a ‘situationship’ with America

If you ask Congresswoman Ayanna Pressley about her relationship with America, she doesn't mince words, “it’s complicated.” Pressley has come to develop strong feelings of patriotism that are rooted in...

8 Heinä 24min

PATRIOTISM IS A VERB: Liberals have a Patriotism Problem

PATRIOTISM IS A VERB: Liberals have a Patriotism Problem

This July 4th, liberals are faced with an awkward milestone. The country’s 250th anniversary requires our attention, and yet, the state of national politics brings only angst and despair. This month o...

2 Heinä 34min

Suosittua kategoriassa Politiikka ja uutiset

uutiscast
aikalisa
politiikan-puskaradio
ootsa-kuullut-tasta-2
rss-ootsa-kuullut-tasta
otetaan-yhdet
rss-seksicast
rss-podme-livebox
tervo-halme
rss-voi-venaja
rss-kaikki-uusiksi
rss-asiastudio
rss-pinnalla
linda-maria
et-sa-noin-voi-sanoo-esittaa
rss-vaalirankkurit-podcast
rss-diet-woke
rss-mina-ukkola
rss-girls-finish-f1rst
nakokulma-oikealta-jussi-halla-ahon-blogin-kommentaarit