Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers

Pam Cusick, Senior Vice President of Rare Patient Voice (RPV): Advancing Health Together — Patients, Caregivers, and Researchers

Our guest today is Pam Cusick Senior Vice President of Rare Patient Voice. Rare Patient Voice is a national community that connects patients and caregivers with researchers who genuinely want to learn from their lived experiences. Through this work, RPV ensures that people living with rare and chronic conditions have a direct voice in shaping studies, treatments, and health innovations. Their model is built on trust, respect, and fair compensation, creating a space where stories become data that can drive meaningful change. Pam Cusick is a leader in patient engagement with more than three decades of experience in research design, implementation, and advocacy. As Senior Vice President of Rare Patient Voice (RPV), she works to ensure that patient and caregiver experiences help shape the future of medical research. Beyond RPV, Pam contributes to the advancement of women in healthcare through her work with Women in Research (WIRe), the Healthcare Businesswomen’s Association (HBA), and the International Society for Patient Engagement Professionals (ISPEP). She continues to mentor emerging leaders who share her dedication to connecting patient advocacy with meaningful scientific progress.

Jaksot(239)

Luz Sotelo, Youth Advocate and Community Leader-Pajaro Valley Prevention and Student Assitance Services

Luz Sotelo, Youth Advocate and Community Leader-Pajaro Valley Prevention and Student Assitance Services

HealthCare UnTold is excited to release our new podcast episode today in collaboration with PODCASTHON.ORG — a global charity event mobilizing thousands of podcasts to support an incredible range of n...

18 Maalis 26min

Mireya Gomez‑Contreras, Executive Director of Esperanza Community Farms: Building a Just Food System

Mireya Gomez‑Contreras, Executive Director of Esperanza Community Farms: Building a Just Food System

Our guest today is Mireya Gomez-Contreras, the Executive Director of Esperanza Community Farms. Mireya reflects on her personal journey, the leadership lessons learned from working alongside immigrant...

29 Tammi 35min

Hector L. Torres‑Diaz: Building Bridges for Civil Rights and Community Empowerment

Hector L. Torres‑Diaz: Building Bridges for Civil Rights and Community Empowerment

Our guest today is Hector L. Torres‑Diaz, the Civil Rights Coordinator for the Pennsylvania Human Rights Commission. He is also a law student specializing in immigration law, public policy, community ...

22 Joulu 202522min

George Carillo: Co-Founder & CEO of the Hispanic Construction Council – Supporting Latino Construction Businesses and Workers

George Carillo: Co-Founder & CEO of the Hispanic Construction Council – Supporting Latino Construction Businesses and Workers

Our guest today is the Co-Founder and CEO of the Hispanic Construction Council. The Hispanic Construction Council is a national dual nonprofit organization, classified as both 501(c)(3) and 501(c)(6),...

23 Loka 202538min

Jill Mather, Founder of Volunteers Cleaning Communities — “Cleaning the Streets of Los Angeles”

Jill Mather, Founder of Volunteers Cleaning Communities — “Cleaning the Streets of Los Angeles”

Our guest today is Jill Mather the Founder of Volunteers Cleaning Communities. This grassroots movement is transforming Southern California’s streets one cleanup at a time. Jill shares how her passion...

7 Loka 202523min

Sehila Mota Casper, Executive Director of Latinos in Heritage Conservation- "Endangered Latinx Landmarks 2025"

Sehila Mota Casper, Executive Director of Latinos in Heritage Conservation- "Endangered Latinx Landmarks 2025"

Our guest today is Sehila Mota Casper, Executive Director of the Latinos In Heritage Conservation. With deep roots in historic preservation and community advocacy, Sehila shares her inspiring journey ...

22 Syys 202526min

Dr. Gena Castro Rodriguez: Healing Through Equity and Community

Dr. Gena Castro Rodriguez: Healing Through Equity and Community

Our guest today is Dr. Gena Castro Rodriguez, a licensed marriage and family therapist, educator, and nationally recognized thought leader with over three decades of experience in mental health, traum...

19 Elo 202518min

Suosittua kategoriassa Tiede

rss-poliisin-mieli
rss-mita-tulisi-tietaa
utelias-mieli
tiedekulma-podcast
docemilia
radio-antro
filocast-filosofian-perusteet
rss-duodecim-lehti
rss-ylistys-elaimille
university-of-eastern-finland
vinkista-vihia
sotataidon-ytimessa
rss-ranskaa-raakana
rss-paanavauksia
rss-astetta-parempi-elama-podcast