pt3: squish squash brick wall
I AM MADELINE10 Maalis

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural pain which creates a special kind of hell. And add to that the new motor on my scooter creating a high-pitched war which collides with the sound sensitivity portion of ME and fibro. And on top of that because of forces outside of his control haven't been able to see my physio for almost 6 weeks. And I haven't had this extent of pain nausea and pain nightmares since the COVID lockdown. now that of course got way worse because it was months. But even being three to four weeks late for physio means i have quite the cacophony of pain, amplified exhaustion, and loss of emotional resiliency

Jaksot(143)

A quick update from the IAM team

A quick update from the IAM team

We're a small team, so when things get tough it's important we don't overdo it. Thanks for staying with us over our impromptu break: Episode 5 is coming soon.

13 Heinä 20211min

Ep. 4 - Do you jump, or do you burn to death?

Ep. 4 - Do you jump, or do you burn to death?

Madeline faces an impossible situation, and she’s not the only one. Poverty is forcing people into assisted death as Canada opens its medically assisted death laws to more people without ensuring the ...

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Ep. 3 - The elephant in the room

Ep. 3 - The elephant in the room

Madeline isn't just fighting a debilitating disease. She's up against a system that legislates her into poverty and denies access to the only treatment that works. Transcripts: IamMadeline.com Twitte...

14 Kesä 202143min

Ep. 2 - Hysteria

Ep. 2 - Hysteria

Madeline’s disease has long been dismissed as “hysteria” a broad and harmful quasi-medical designation that was listed in the American Psychiatric Association’s Diagnostic and statistical manual of me...

31 Touko 202138min

The Commentary: Ash Kelly discusses I AM MADELINE

The Commentary: Ash Kelly discusses I AM MADELINE

Last week, I AM MADELINE host Ash Kelly was a guest on Joseph Planta's podcast, The Commentary. She told Joe about this podcast, why Madeline’s story needs to be heard, and how new ideas might be chan...

29 Touko 202131min

Ep. 1 - How do you solve a problem?

Ep. 1 - How do you solve a problem?

Madeline has a magnetic personality and she's a prolific volunteer who is well known in her community. She's also scheduled to die in just a few weeks. Madeline lives with a debilitating but treatable...

16 Touko 202131min

Trailer, Season 1

Trailer, Season 1

Myalgic Encephalomyelitis does not have to be a deadly disease. As hundreds of thousands of people with so-called "Long Haul COVID-19" are being diagnosed with the illness, people like Madeline have b...

10 Touko 20211min

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