Mick Unplugged10 Heinä 2024

Chad and Alicia Bohley | Beyond the Diagnosis: A Family's Fight Against MPS 1

In this heartfelt episode, Mick Hunt talks with Chad and Alicia about their family's battle with MPS 1 following their son's late diagnosis. They discuss the complexities of the disease, the critical role of early detection, and their dedicated efforts to raise awareness and support other affected families. Their story is not just one of challenges but also immense love, resilience, and hope. Background: Chad and Alicia share their journey dealing with their son’s diagnosis of MPS 1, a rare genetic condition. Discussion Topics: The challenges of recognizing and diagnosing MPS 1 include initial symptoms and the genetic aspects of the disease. The emotional and practical impacts of MPS 1 on their family life, detailing their son's various treatments and their advocacy efforts. The importance of genetic testing and early diagnosis, and the couple's involvement in legislative changes to support this cause. Key Quotes: "No parents should have to wait three years to get this diagnosis." "Every single symptom he has was like checking off a box." Next Steps: Learn More: Dive deeper into MPS 1 and how you can support families and research. Reflect: Consider how you can contribute to advocacy in your community for rare diseases. Engage: Share your thoughts or stories about overcoming health challenges using #MickUnplugged. Connect & Discover:National MPS Society: mpssociety.org>courage>jacob-bohley ★ Support this podcast on Patreon ★ See omnystudio.com/listener for privacy information. Learn more about your ad choices. Visit megaphone.fm/adchoices See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(299)

Kier Gaines: Why Healing Starts With the Truth You Keep Avoiding

Mick sits down with licensed therapist, mental health advocate and author Kier Gaines for a direct conversation about emotional honesty, uncomfortable truths and the courage to begin. Kier explains w...

3 Syys 50min

Faith Over Fear: Governor Wes Moore on Service, Patriotism & Moral Leadership

Discussion about service, patriotism, faith, leadership, technology, and the responsibility to leave no one behind. Governor Moore explains why "service saved me," beginning with the mentors, teacher...

27 Elo 43min

Giada DeLaurentiis: The Secret Ingredient is Joy

What if one of the most important ingredients in a healthy life isn’t actually on your plate? In this episode of Mick Unplugged, Mick Hunt sits down with Emmy Award-winning chef, bestselling author...

20 Elo 36min

You're Not Burned Out - You're Bored Out: Mitch Matthews on Reigniting Your Fire

What if the exhaustion you feel isn’t burnout at all? Success coach, keynote speaker, and Dream Think Do host Mitch Matthews joins Mick Hunt for a conversation about purpose, clarity, action, and the...

13 Elo 54min

Confidence Comes Last: Nick Koumalatsos on Leadership, Purpose & 8-Figure Brands

What happens when the uniform comes off but the mission is far from over? In this episode of Mick Unplugged, Mick Hunt sits down with Marine Raider veteran, entrepreneur, author, and leadership strat...

6 Elo 53min

Called to Act: André Holland on Purpose, Community, and Creating Room for Others

André Holland has built an acclaimed career through performances in Moonlight, Selma, The Knick, High Flying Bird, and more—but his deepest calling reaches far beyond the screen. In this conversation ...

30 Heinä 38min

Unfiltered Truth: Comedy's Power with Leslie Jones

Don't apologize for who you are... because you were made that way for a reason. Comedian Leslie Jones, renowned for her groundbreaking work on Saturday Night Live, shares how embracing her authentic ...

23 Heinä 42min

Why Not Swing Big: Unlocking Your Undeniable Potential with Kwame Christian

Because the best things in life are on the other side of difficult conversations. Mick Hunt welcomes Kwame Christian, CEO of the American Negotiation Institute, who reveals how to approach difficult ...

16 Heinä 54min