Education, connection, and community, bringing the CF community together.
Education, connection, and community are at the heart of our CF community. On Saturday, April 18th from 11:00 a.m. to 1:30 p.m. we gathered at the Next Step Gallery in Ferndale. Set in a bright galle...
27 Huhti 42min
Learning, Leading, Listening: Julie Eichenberg of BreatheStrong CF
“Being a CF aunt has shaped so much of my life. Now I get the opportunity to turn that love and connection into helping even more people at Breathe Strong CF." Julie Dunn Eichenberg didn’t just find ...
13 Huhti 35min
Hope for the final ten percent, Dr. Alan Cohen, Arcturus
Three decades caring for patients with CF, that’s Dr. Alan H. Cohen. His experience continues to shape everything he does today. As a pediatric pulmonologist (board-certified) , he has walked alongsid...
30 Maalis 48min
Spreading Joy in a Small World: Julie McCaffrey’s Story
I’ve known Julie McCaffrey for years. She lives about 40 minutes from me, in Romeo, Michigan. Julie and her husband, Curtis, are raising four daughters, and their oldest, Jenna—now 20—lives with cysti...
23 Maalis 28min
Making medical moments less scary thanks to Abby Rose (Child Life Specialist)
“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re goin...
16 Maalis 42min
Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd
Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resil...
9 Maalis 45min
"Patients are waiting." Steve St. Onge with Clarameytx
“Patients are waiting…”Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply.Science has always fascinated me. I often jok...
2 Maalis 31min
