Learning, Leading, Listening: Julie Eichenberg of BreatheStrong CF

Learning, Leading, Listening: Julie Eichenberg of BreatheStrong CF

“Being a CF aunt has shaped so much of my life. Now I get the opportunity to turn that love and connection into helping even more people at Breathe Strong CF."

Julie Dunn Eichenberg didn’t just find the cystic fibrosis community, she’s been part of it for more than 30 years as a proud CF aunt.

That personal connection is what makes this next chapter so meaningful.

Julie recently stepped into the role of Executive Director at BreatheStrong CF, where the focus is on helping people with cystic fibrosis live stronger, healthier lives through exercise, education, and empowerment. And while she brings decades of experience in leadership, fundraising, and relationship-building, she’s honest about getting used to the role.

She’s learning. Listening. Figuring out the day-to-day. And really taking the time to understand how she can best serve the community in this new position.

Before this, Julie spent 20 years at Turner Broadcasting System (now part of Warner Bros. Discovery), and later held leadership roles at Florida State University and Fan Data Insights. But no matter where her career took her, the CF community was always part of her life.

She’s also been deeply involved with the Cystic Fibrosis Foundation, serving as Chair of the Georgia Chapter and contributing at the national level.

We talk about what it feels like to step into a leadership role that’s so personal. The excitement, the pressure, and the responsibility that comes with it. Julie shares what she’s learning, what’s surprised her, and why her connection as a CF aunt continues to guide every decision she makes.

Because for Julie, this isn’t just a job, it’s personal.

Please like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Jaksot(195)

Education, connection, and community, bringing the CF community together.

Education, connection, and community, bringing the CF community together.

Education, connection, and community are at the heart  of our CF community. On Saturday, April 18th from 11:00 a.m. to 1:30 p.m. we gathered at the Next Step Gallery in Ferndale. Set in a bright galle...

27 Huhti 42min

Men with CF and Infertility: The Science, The Options, The Hope.

Men with CF and Infertility: The Science, The Options, The Hope.

Men with CF and Infertility: The Science, The Options, The Hope. Pete Proimos is an entrepreneur, a chronic illness advocate, and the founder of the Filotimo Foundation, a nonprofit dedicated to suppo...

6 Huhti 49min

Hope for the final ten percent, Dr. Alan Cohen, Arcturus

Hope for the final ten percent, Dr. Alan Cohen, Arcturus

Three decades caring for patients with CF, that’s Dr. Alan H. Cohen. His experience continues to shape everything he does today. As a pediatric pulmonologist (board-certified) , he has walked alongsid...

30 Maalis 48min

Spreading Joy in a Small World: Julie McCaffrey’s Story

Spreading Joy in a Small World: Julie McCaffrey’s Story

I’ve known Julie McCaffrey for years. She lives about 40 minutes from me, in Romeo, Michigan. Julie and her husband, Curtis, are raising four daughters, and their oldest, Jenna—now 20—lives with cysti...

23 Maalis 28min

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re goin...

16 Maalis 42min

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resil...

9 Maalis 45min

"Patients are waiting." Steve St. Onge with Clarameytx

"Patients are waiting." Steve St. Onge with Clarameytx

“Patients are waiting…”Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply.Science has always fascinated me. I often jok...

2 Maalis 31min

Suosittua kategoriassa Koulutus

rss-murhan-anatomia
psykopodiaa-podcast
voi-hyvin-meditaatiot-2
adhd-podi
rss-niinku-asia-on
rss-liian-kuuma-peruna
rss-rahamania
jari-sarasvuo-podcast
psykologia
rss-valo-minussa-2
rss-tietoinen-yhteys-podcast-2
kesken
rss-arkea-ja-aurinkoa-podcast-espanjasta
rss-narsisti
rss-vapaudu-voimaasi
rahapuhetta
filocast-filosofian-perusteet
ihminen-tavattavissa-tommy-hellsten-instituutti
kehossa
rss-psykalab