BioBank and Tissue Donation with Jefferson Weinberg ALS Center - ALS United Mid-Atlantic GOALS Podcast

BioBank and Tissue Donation with Jefferson Weinberg ALS Center - ALS United Mid-Atlantic GOALS Podcast

Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atlantic care team.

To learn more about their research, visit: https://www.jeffersonhealth.org/clinical-specialties/amyotrophic-lateral-sclerosis-care.html

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(67)

Lessons in Leadership and Providing Care with Taryn Norley from ALS Arizona

Lessons in Leadership and Providing Care with Taryn Norley from ALS Arizona

Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it compares to other ALS United part...

7 Heinä 39min

Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast

Inspiration and Hope in ALS Research - Brianna Lisi, MS joins the ALS United GOALS Podcast

Brianna Lisi, MS, is a PhD candidate doing her work at the Jefferson Weinberg ALS Center in Philadelphia. In this Podcast, Brianna talks about what inspired her to go into ALS research, what a typical...

30 Kesä 28min

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Speech Therapy for ALS Patients - Josi Shimkus on the ALS United Mid-Atlantic GOALS Podcast

Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and work assisting people with AL...

23 Kesä 28min

United in Care - Cassy Adams Executive Director with ALS Northwest

United in Care - Cassy Adams Executive Director with ALS Northwest

Cassy Adams from  @ALSNorthwest  joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS com...

9 Kesä 35min

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of ...

26 Touko 30min

Empowering People with ALS through Research, Advocacy, and Awareness -  GOALS Podcast with Nadia Sethi

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. ...

19 Touko 38min

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP-43. Dr. Arnold talks about hi...

28 Huhti 44min

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in research, and addressing the ne...

21 Huhti 26min

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