35. LGMD Awareness Day! (ft. Kelly Brazzo)

35. LGMD Awareness Day! (ft. Kelly Brazzo)

The 30th of September this year marks the 10th anniversary of Limb Girdle Muscular Dystrophy Awareness Day, and I could think of no one better to join me for this episode than Kelly Brazzo, the CEO and founder of the Cure LGMD2i Foundation - Unbalanced's brand new sponsor!

Kelly shares the LGMD diagnosis story of her daughter Sammy, and how the Foundation has grown to what it is now; researching for a cure and giving hope to patients and their families.

Check out their website here: https://curelgmd2i.com

Donate here: https://curelgmd2i.networkforgood.com/projects/91723-supporting-scientific-research-for-lgmd2i

Don't forget to rate this podcast 5 stars, follow/subscribe and press the bell button so you don't miss out on new episodes!

Instagram: @unbalancedpodcast

YouTube: https://www.youtube.com/@cerysdavage

Tikok: @cerysdavage

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95. A deep dive into LGMD2i/R9 (ft. Mallory Harden PhD)

95. A deep dive into LGMD2i/R9 (ft. Mallory Harden PhD)

To mark LGMD Awareness Day on the 30th of September, this episode is brought to you from the Dystroglcanopathies Conference in Iowa, partnering with BridgeBio Neuromuscular. Mallory provides an insigh...

27 Syys 33min

94. How do I navigate a work life balance?

94. How do I navigate a work life balance?

After experiencing phases of burnout and struggling to find a good work / life balance, it's time to take it to the podcast. Whether you're disabled or not, hopefully this episode can provide comfort ...

13 Syys 43min

93. Rediscovering my identity with a disability ft. Tatum Karmen

93. Rediscovering my identity with a disability ft. Tatum Karmen

We're back in London for another brilliant chat, this time with Tatum, who lives with Limb Girdle Muscular Dystrophy 2B/R2. I'm fascinated by their story and the challenges they've had to overcome as ...

30 Elo 46min

92. It's time to get off our phones

92. It's time to get off our phones

I've had a phone addiction since I was introduced to social media (ironic for someone who works in social media) and although it's not half as bad now, we're all looking for ways to substitute phone t...

16 Elo 37min

91. Girl Talk: More Than Muscle (ft. Charley Reuben)

91. Girl Talk: More Than Muscle (ft. Charley Reuben)

Join us in Leeds for a proper girl talk of all things life with LGMD; including going out, self care, mental health, and mobility aids.Learn more about Charley's More Than Muscle: https://www.muscular...

2 Elo 47min

90. Defying the odds of Muscular Dystrophy (ft. Jed Thirkettle)

90. Defying the odds of Muscular Dystrophy (ft. Jed Thirkettle)

I'm so excited to (finally) chat with Jed on the podcast! We exchange Muscular Dystrophy stories and talk all things exercise and the road to JUCED, Jed's passion project.Check out JUCED's website: ht...

26 Heinä 54min

89. Celebrating three years of Unbalanced!

89. Celebrating three years of Unbalanced!

We're celebrating 3 years of this podcast (I can't believe it!) and with that comes a big rebrand! I hope you like it and that you stick around for this next chapter - it's gonna be a good one...Thank...

19 Heinä 24min

88. Why should I go to a conference?

88. Why should I go to a conference?

Enjoy this mix of interviews from both the LGMD2i/R9 Conference in Denmark and the Wellstone Dystroglycanopathies Conference in Iowa.Thank you to Sofie, Seamus, Bori, Lili, Freya, Madeleine, Avery and...

5 Heinä 37min

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