Ep. 57 - I’m Not Dead if I’m Still Talking: Behind the Film A Butterfly Has Been Released

Ep. 57 - I’m Not Dead if I’m Still Talking: Behind the Film A Butterfly Has Been Released

In this episode, filmmakers Barry Koch and Jason Zamer are joined by Angela Novas, Chief Medical Officer of the Hospice Foundation of America, to discuss A Butterfly Has Been Released. The documentary follows hospice nurse Allyson during the final 39 days of her life with brain cancer. Determined to turn her dying into a teaching moment, she hosts a living funeral, shares deep conversations with loved ones, and chooses a natural green burial—modeling agency and intention through the end of life.

Barry and Jason reflect on the emotional and ethical realities of documenting such an intimate journey, while Angela offers a hospice leadership perspective on what the film reveals about patient autonomy and end-of-life care. Together, they explore how storytelling can reshape conversations about death and grief.

This episode invites palliative and hospice professionals to reflect on what happens when the caregiver becomes the patient—and how narrative can be a powerful vehicle for change.

“A Butterfly Has Been Released” is available for individual and community viewing, with and without continuing education credit at Hospice Foundation of America website.

Barry Koch Barry Koch is a media executive turned end-of-life innovator whose work brings humanity, honesty, and meaning making to life’s final chapter. Through the production of films like A Butterfly Has Been Released and digital projects that enhance deathcare literacy, he sparks important and necessary conversations that families often avoid. As a Co-founder of TGBeyond and longtime hospice volunteer, he champions compassionate care, community healing, and conscious choices at the end-of-life.

Jason Zamer Jason Zamer is a healthcare technology innovator turned documentary storyteller, using film to illuminate the emotional and therapeutic power of end-of-life narratives. With 20+ years designing evidence-based interventions for older adults, he blends science, empathy, and creativity to transform how we communicate about dying. As co-founder of TGBeyond, he creates “deadutainment”—engaging, empowering content that normalizes death conversations—through tools and stories that help families prepare, heal, and connect through life’s final chapter.

Angela Novas Angela Novas is a nationally recognized hospice and palliative care clinician who serves as Chief Medical Officer and consultant for the Hospice Foundation of America (HFA). She moderates and participates in HFA's professional educational panels, provides information about hospice to the public, and is frequently quoted by major media outlets including The Washington Post, AARP, USA Today, and NPR. With advanced training from Harvard and The George Washington University, she leads with clinical rigor, compassion, and a commitment to high-quality end-of-life care.

Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.

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Ep. 64- The Human Behind the Credential

Ep. 64- The Human Behind the Credential

In this episode of HPNA Palliative Perspective, we sit down with Hospice and Palliative Credentialing Center (HPCC) President Kristin Akers, MSN, ACNP-BC, ACHPN®, FPCN® to talk about her journey into ...

2 Marras 19min

Ep. 63- Connection Before Care: Small Communication Shifts That Change Everything

Ep. 63- Connection Before Care: Small Communication Shifts That Change Everything

What if the key to reducing resistance to care isn't doing more, but approaching care differently? In this episode of HPNA Palliative Perspective, internationally recognized dementia care expert Teepa...

1 Loka 23min

Ep. 62 - Advocating Beyond the Bedside: Nursing Leadership in Health Policy

Ep. 62 - Advocating Beyond the Bedside: Nursing Leadership in Health Policy

Advocacy doesn't begin in the legislature—it begins wherever nurses use their voices to improve care.  In this episode of Palliative Perspective, HPNA Advocacy Committee member Janelle Williamson MSN,...

1 Syys 21min

Ep. 61 - Retirement with Purpose: Volunteerism and Palliative Care Ministry

Ep. 61 - Retirement with Purpose: Volunteerism and Palliative Care Ministry

For many nurses, retirement marks not the end of a career, but the beginning of a new chapter of service. In this episode, former HPNA CEO Judy Lentz, PhD, RN, reflects on how retirement created an op...

3 Elo 24min

Ep. 60 - Breath, Boundaries, and Letting Go: Ventilation Discontinuation in Rural Long-Term Care

Ep. 60 - Breath, Boundaries, and Letting Go: Ventilation Discontinuation in Rural Long-Term Care

Prolonged mechanical ventilation in rural long-term care settings brings a unique set of clinical, ethical, and logistical challenges for care teams, residents, and their families. In this episode, we...

1 Heinä 21min

Ep. 59 - Finding Our Professional Home: Community, Connection, and the Future of Hospice & Palliative Nursing

Ep. 59 - Finding Our Professional Home: Community, Connection, and the Future of Hospice & Palliative Nursing

In this episode of HPNA Palliative Perspective, we’re joined by Betty Ferrell—Editor of the Journal of Hospice & Palliative Nursing (JHPN), nurse, and internationally recognized researcher. As the lea...

1 Kesä 28min

Ep. 58 - After Five: The Other 123 Hours of Hospice Care

Ep. 58 - After Five: The Other 123 Hours of Hospice Care

Hospice care is often structured around a 40-hour workweek—but patients and families need support 24/7. In this episode, we explore what happens during the “other 123 hours”: nights, weekends, and hol...

1 Touko 22min

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