Unseen Battles: Understanding Invisible Illnesses
Note To Self21 Touko 2025

Unseen Battles: Understanding Invisible Illnesses

May is an important month in the calendar of many living with an invisible illness.

In this episode I sit down with Karen Cooper to shed light on the often-overlooked realities of living with invisible illnesses, with a focus on Ehlers-Danlos Syndrome (EDS) and Hashimoto’s thyroiditis. Karen shares her personal journey through misdiagnosis, chronic pain, and the daily challenges of managing complex health conditions. Together, they explore the importance of self-advocacy in healthcare, the societal dismissal of women’s health concerns, and the critical need for empathy and awareness. This conversation also highlights the power of community, the value of listening to your body, and the importance of empowering the next generation to speak up, seek support, and practice self-kindness.

https://www.ehlers-danlos.com/


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