Changing The Trisomy 13 And 18 Narrative
Unfortunately and inaccurately, the phrase "incompatible with life" still shows up around trisomy 13 and trisomy 18, even as survival data, clinical experience, and professional guidance continue to e...
1 Touko 58min
World Down Syndrome Day: Reframing a Diagnosis with Jack's Basket
The first seconds after a Down syndrome diagnosis can echo for a lifetime and the difference often comes down to a few words. We sit down with Carissa Carroll, founder of Jack’s Basket, and Lauren Tal...
1 Huhti 51min
How QALYs Devalue Lives of Disabled People And What We Can Do About It
A single number deciding who gets care sounds efficient—until that number discounts your life. We dive into the world of QALYs (quality-adjusted life years) with attorney and policy leader Sylvia Yee ...
19 Maalis 49min
Echoes Of Eugenics In Modern Tech
"Super babies," subway ads, and “ best baby” promises are grabbing headlines, but the story underneath is older and more complicated. We sit down with seasoned genetic counselors Laura Hercher and Bob...
31 Joulu 20251h 7min
Holiday DNA Deals Or Pandora's Box
Holiday sales make DNA kits look like shortcuts to certainty, but the fine print tells another story. We sit down with genetic counselor and rare disease advocate Devin Shuman to pull back the curtain...
3 Joulu 20251h 4min
Genetic Counseling Reimbursement: Challenges and Solutions for Patient Access
Think billing for genetic counseling services is just about paperwork and numbers? Think again. In this eye-opening episode, we pull back the curtain on one of the most critical yet overlooked challen...
2 Syys 202549min
Medicaid and the Devastating Ripple Effect of Budget Cuts on People with Disabilities
The House just passed what President Trump calls the "Big Beautiful Bill," and its implications could be devastating for millions of Americans who depend on Medicare and Medicaid. As this massive budg...
27 Touko 202532min
