Episode 395: Beyond Treatment: How the Helpline Supports Disability in Breast Health Care

Disability and breast cancer intersect in more than one direction. Some people develop long-term effects like lymphedema, neuropathy or cognitive changes because of treatment — effects recognized as disabilities under the Americans with Disabilities Act. Others are already living with a disability, of any kind, when a breast cancer diagnosis enters the picture. This July, in recognition of Disability Pride Month, Krista Park Berry, Director of Susan G. Komen’s Breast Care Helpline, returns to Real Pink to talk about how the Helpline supports people through their breast health experience no matter when their disability started, and what that support looks like for women of color in particular.

Key takeaways

No two disability experiences are the same
Disability can exist before or develop after breast cancer treatment
The Komen Breast Care Helpline provides personalized support and resources
Accessible, whole-person care improves quality of life and health outcomes

Chapters
00:00 – Understanding disability and breast cancer

02:08 – Treatment-related disabilities and ADA protections

06:26 – Supporting people living with metastatic breast cancer

08:11 – Navigating breast cancer with a pre-existing disability

12:11 – Health equity, women of color, and closing care gaps

13:36 – Why asking for help can change everything

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