From Lived Experience to Lasting Change: The Power of Patient Advocacy

From Lived Experience to Lasting Change: The Power of Patient Advocacy

Patient voices have the power to shape research, healthcare, policy and the future of neurology — but how can those voices be heard? In this episode of One Voice for Neurology, Sam Pauly is joined by Joe Lindahl, CEO of Mission MSA, and Naomi Fukuda, parent and patient advocate at Dravet Syndrome Japan, to explore the power of patient advocacy and lived experience. They discuss the barriers that can prevent patients and families from finding their voice, the importance of engagement, empowerm...

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Jaksot(25)

From Lived Experience to Lasting Change: Building Better Neurology Together

From Lived Experience to Lasting Change: Building Better Neurology Together

As the European Federation of Neurological Associations (EFNA) celebrates 25 years of advocacy, Sam Pauly is joined by Dr. Orla Galvin, Executive Director of EFNA, which serves as the Secretariat for ...

3 Elo 24min

Building Global Neurology: Tackling Inequality, Workforce Gaps and the Future of Brain Health

Building Global Neurology: Tackling Inequality, Workforce Gaps and the Future of Brain Health

Neurological conditions are one of the biggest health challenges facing the world today — yet access to neurological care remains deeply unequal. In this episode of One Voice for Neurology, Professor ...

24 Kesä 24min

The European Partnership for Brain Health: A New Era for Research, Collaboration and Impact

The European Partnership for Brain Health: A New Era for Research, Collaboration and Impact

In this episode of One Voice for Neurology, we explore a major new initiative set to reshape the future of brain research and collaboration across Europe — the European Partnership for Brain Health. S...

29 Huhti 18min

Leading the Way in Neurology: Progress, Priorities & Policy for OneNeurology

Leading the Way in Neurology: Progress, Priorities & Policy for OneNeurology

In this episode of One Voice for Neurology, Abdelfatah Ibrahim and Kevin Rostásy, the new Chairs of the OneNeurology Partnership, discuss progress in strengthening global collaboration across the neur...

19 Maalis 22min

Different Brains, Better Care: Personalising Neurology for Everyone

Different Brains, Better Care: Personalising Neurology for Everyone

In this episode of One Voice for Neurology, we explore how personalised and precision approaches in neurology can improve care for everyone by recognising individual differences in brain health, inclu...

11 Joulu 202540min

Neurology on the Global Agenda

Neurology on the Global Agenda

Stroke and other neurological conditions are a leading cause of death and disability worldwide—but solutions exist. In this episode of One Voice for Neurology, Sam Pauly explores the global neurology ...

22 Syys 202542min

Episode 17 – Living with the Impact of Neurological Disorders

Episode 17 – Living with the Impact of Neurological Disorders

Released on World Brain Day In this episode of the One Voice for Neurology podcast, we explore the lasting and often invisible impact of neurological disorders on individuals, families, and carers. We...

21 Heinä 202540min

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