The Power of Twinning ( a mentoring program Country to Country )
The power of Twinning! What happens when countries work together as part of a mentoring program.What happens when a CF clinic in Brussels partners with a CF clinic in Romania? They learn from each ot...
2 Marras 50min
Rethinking Nutrition in the Trikafta Era with Stacey Fogarty-Brown
I first met Stacey Fogarty-Brown when I decided to travel to Egypt to meet CF families and learn more about the CF community there. Stacey joined me on that journey, and together we saw firsthand the ...
19 Loka 32min
Friday the 13th is lucky for Chloe Higgenbotham
A Lucky Diagnosis on Friday the 13thFriday the 13th is supposed to be unlucky. But for today’s guest, it may have been one of the luckiest days of her life.Chloe was diagnosed with cystic fibrosis jus...
12 Loka 31min
CF and Israel: Meet our friend Lea Goldberger
I met Lea Goldberger, the CEO of the Cystic Fibrosis Association of Israel at a conference in Lisbon, Portugal. The European CF Society Conference. She was not always in nonprofit leadership; she spen...
5 Loka 44min
Beyond CF: A Rare Disease Conversation with the Goldbergs
Rare disease connects more people than many of us realize. While every diagnosis is unique, the journey often includes many of the same challenges: searching for answers, navigating the healthcare sy...
28 Syys 52min
The Night Shift: Living with CF After Dark, Dr. Kimberly Canter
I Was Wide Awake for Dr. Kimberly Canter’s Presentation on Sleep and Cystic FibrosisI was wide awake during a presentation about sleep, but that’s exactly what happens when you hear Dr. Kimberly Cante...
21 Syys 43min
16 Years of Hope: Why the Bonnell Foundation’s Mission Matters
Hi everyone, The Bonnell Foundation’s mission has always been deeply personal. As we celebrate our Sweet 16 Night of Hope Gala on September 19th, it’s a perfect time to reflect on why this work matte...
14 Syys 15min
