Why hasn't crowdsourcing of medical data from public disrupted healthcare?, with Jamie Heywood

Why hasn't crowdsourcing of medical data from public disrupted healthcare?, with Jamie Heywood

An interview with Jamie Heywood, who got into the medical research field when his brother was diagnosed with ALS and Jamie wanted to do everything he could do to save him. Jamie started an ALS research institute, and later was co-founder and CEO of PatientsLikeMe, an organization for collecting real-world medical data directly from patients. He discusses the strengths and challenges in collecting real-world patient-reported data, why such tactics haven't been as disruptive and revolutionary as their potential suggests, and thoughts on the problems we face in medical research and healthcare solutions in general. Support the show To get ad-free episodes, and more, get a premium subscription. To learn more about the show, go to behavior-podcast.com. I'm on Twitter at @apokerplayer. See a summary of my work. Learn more and sign up for a premium subscription at PeopleWhoReadPeople.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

Jaksot(205)

Tracking people over terrain: What's real, what's fiction?

Tracking people over terrain: What's real, what's fiction?

Have you ever wondered how tracking people actually works? You’ve probably seen a lot of Hollywood depictions of how law enforcement track people over external terrain, and maybe you’ve wondered what’...

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NLP pseudoscience and its use by Chase Hughes and other con artists and deceptive faux-gurus

NLP pseudoscience and its use by Chase Hughes and other con artists and deceptive faux-gurus

You’ve probably heard of neuro-linguistic programming (NLP). It’s a popular thing. It’s the foundation for the work of popular life/business coach Tony Robbins, and there are many other popular traine...

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Is the internet a methamphetamine of the masses?

Is the internet a methamphetamine of the masses?

Is it possible that internet communication, by speeding up and distorting our interactions, is agitating us and deranging us? Is it possible that by putting human interactions “on speed,” the internet...

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"They're the violent, crazy ones!": How polarization warps our views of our political opponents

"They're the violent, crazy ones!": How polarization warps our views of our political opponents

A major barrier to reducing toxic polarization is that so many of us—especially those who are highly politically involved—see our current toxic conflict as clearly the other side’s fault. People in bo...

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Are you and I (and everyone) the same person? A talk on Open Individualism with Joe Kern

Are you and I (and everyone) the same person? A talk on Open Individualism with Joe Kern

What if your sense of existence, your self-awareness, isn’t unique at all—but the very same “I” that exists in everyone, everywhere? What if you and I—and everyone—are essentially the same person? In ...

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The psychology of Bad Vegan: Sarma Melngailis on narcissistic abuse and life after

The psychology of Bad Vegan: Sarma Melngailis on narcissistic abuse and life after

The documentary "Bad Vegan" was about Sarma Melngailis’s nightmarish journey from successful New York City restaurant owner to Rikers inmate jailed for stealing millions. How did this happen? Sarma wa...

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The surprising power of nostalgia — and how it can be used on you

The surprising power of nostalgia — and how it can be used on you

What does nostalgia do to our minds — and our wallets? In this talk with Jannine Lasaleta, we talk about her research into the surprising psychological and emotional effects of nostalgia. Why do peopl...

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My life-changing experience with meditation

My life-changing experience with meditation

In the summer of 2024, I went on a five-day solo retreat in the mountains of New Mexico. It was the first time I’d ever really committed to meditation, and to my surprise it turned out to be a deeply ...

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