Ep. 4 - Do you jump, or do you burn to death?

My birthday is coming up and I'm having all kinds of feelings about it so I thought I would share. The photo is from a story I talk about in the episode about my 10th birthday For those who don't kno...

16 Joulu 202317min

I have much to update you on but I will do that at another time as I've overdone on textual communication this week. I wanted to let you know that I made three YouTube videos that I've set to premie...

7 Joulu 20232min

I think the title sums it up. I talk about some good things that have happened and how I'm navigating the week leading up to the next fire suite t inspection with a little more resiliency. In the last...

30 Marras 202328min

Today I talk not just about the pain and exhaustion and pushing through to get ready for the second fire inspection, but individual and collective ableism creating a situation that sends the message, ...

19 Marras 20231h 9min

In this episode I talk about today's suite inspection, the unrealistic ableist expectations and timelines (plus assumptions of supports that don't exist within the system and definitely not for my dis...

8 Marras 202321min

So much happening to me, non of it easy or fun. Pro bono clinic says no, suite inspection colliding with med appts, hyperbaric chamber improvements, intravenous issues, long shot of tiktok, & am I off...

21 Loka 202341min

I was going to title this episode why does the universe hate me, because today it was one hard thing after the other. But towards the end I got to thinking about how wonderful things giving was. But I...

13 Loka 202317min

I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. T...

3 Loka 202319min