Coping, Denial or Both
I AM MADELINE26 Elo 2023

Coping, Denial or Both

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025 And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis- Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205 More info on MS and Epstein-Barr Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM https://www.nature.com/articles/s41586-022-04432-7 Gfm for those who want it https://gofund.me/cff39173 (Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

Jaksot(144)

Ep. 5 - Christmas in July

Ep. 5 - Christmas in July

"If they would rather die, they had better do it, and decrease the surplus population." said the world's most famous miser, Ebenezer Scrooge, of those in poverty, before his Christmas Eve enlightenmen...

22 Heinä 202150min

A quick update from the IAM team

A quick update from the IAM team

We're a small team, so when things get tough it's important we don't overdo it. Thanks for staying with us over our impromptu break: Episode 5 is coming soon.

13 Heinä 20211min

Ep. 4 - Do you jump, or do you burn to death?

Ep. 4 - Do you jump, or do you burn to death?

Madeline faces an impossible situation, and she’s not the only one. Poverty is forcing people into assisted death as Canada opens its medically assisted death laws to more people without ensuring the ...

1 Heinä 20211h 5min

Ep. 3 - The elephant in the room

Ep. 3 - The elephant in the room

Madeline isn't just fighting a debilitating disease. She's up against a system that legislates her into poverty and denies access to the only treatment that works. Transcripts: IamMadeline.com Twitte...

14 Kesä 202143min

Ep. 2 - Hysteria

Ep. 2 - Hysteria

Madeline’s disease has long been dismissed as “hysteria” a broad and harmful quasi-medical designation that was listed in the American Psychiatric Association’s Diagnostic and statistical manual of me...

31 Touko 202138min

The Commentary: Ash Kelly discusses I AM MADELINE

The Commentary: Ash Kelly discusses I AM MADELINE

Last week, I AM MADELINE host Ash Kelly was a guest on Joseph Planta's podcast, The Commentary. She told Joe about this podcast, why Madeline’s story needs to be heard, and how new ideas might be chan...

29 Touko 202131min

Ep. 1 - How do you solve a problem?

Ep. 1 - How do you solve a problem?

Madeline has a magnetic personality and she's a prolific volunteer who is well known in her community. She's also scheduled to die in just a few weeks. Madeline lives with a debilitating but treatable...

16 Touko 202131min

Trailer, Season 1

Trailer, Season 1

Myalgic Encephalomyelitis does not have to be a deadly disease. As hundreds of thousands of people with so-called "Long Haul COVID-19" are being diagnosed with the illness, people like Madeline have b...

10 Touko 20211min

Suosittua kategoriassa Yhteiskunta

sita
olipa-kerran-otsikko
ihme-ja-kumma
kaksi-aitia
siita-on-vaikea-puhua
i-dont-like-mondays
uutiscast
poks
gogin-ja-janin-maailmanhistoria
antin-palautepalvelu
kolme-kaannekohtaa
mamma-mia
rss-murhan-anatomia
yopuolen-tarinoita-2
aikalisa
loukussa
meidan-pitais-puhua
rss-palmujen-varjoissa
naakkavalta
ootsa-kuullut-tasta-2