Perils Of Minimal Supports
I AM MADELINE17 Syys 2023

Perils Of Minimal Supports

I'm having quite the interesting 24 hours and not in a good way. Minimal supports has meant I've had a bad reaction to one of my treatments, actually both of my treatments today simply because minimum health supports always means maximum complicating issues. I am very not okay and I'm very worried about running out of emotional resiliency to keep fighting Gfm https://gofund.me/cff39173 Fyi this was published Thurs but that got messed up somehow and I can figure out how to change the publish date to the proper one. Le sigh

Jaksot(143)

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Tammi 9min

Jan 1, 2 AM, 2026

Jan 1, 2 AM, 2026

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...

1 Tammi 17min

pt 2 my op-ed Canary UK

pt 2 my op-ed Canary UK

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

20 Joulu 20252min

My CanaryUK op-ed is out

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

19 Joulu 20252min

Merry Merry

Merry Merry

where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but...

18 Joulu 202514min

The Fine Art Of Distraction

The Fine Art Of Distraction

where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatme...

17 Joulu 202510min

Sinterklaas

Sinterklaas

where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. ...

5 Joulu 202546min

preparation is the better part of valor

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...

1 Joulu 202524min

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