ep 6 - A marathon, not a sprint
epilepsycast27 Heinä 2020

ep 6 - A marathon, not a sprint

Patience was diagnosed with epilepsy when she was 14. She has both tonic-clonic and focal seizures, sometimes two or three a week. Patience chats with us about her epilepsy journey. How her sister reacted to her first seizure, how shocked her friends and family were, her struggles with work and an invisible condition and her incredible decision to move her life to a different city. Throughout, Patience maintains her philosophy: ‘Keep in control’.

Check out Patience’s new YouTube channel ‘Complete Patience’: www.youtube.com/channel/UC49RazyRNhh8S2-Y7BhPtmw

This week’s epilepsy news:

• With face coverings in shops becoming mandatory on 24th July, we share advice received from Dr Rhys Thomas about how safe they are for people with epilepsy. (www.epilepsy.org.uk/info/daily-life…avirus-covid-19)

• The International Bureau for Epilepsy is looking to gather stories of people’s experience with COVID-19 and lockdown. Please email us on podcast@epilepsy.org.uk to share any stories.

• Epilepsy Action has launched its gaming for good fundraising programme. Set yourself some gaming challenges, stream on your platform of choice and get your viewers involved in donating and learning about epilepsy. Learn more at epilepsy.org.uk/gaming

Jaksot(13)

In conversation with model Ariish Wol

In conversation with model Ariish Wol

This bonuscast celebrates International Epilepsy Month with an in-depth conversation with model Ariish Wol. Born in South Sudan, Ariish moved to Canada as a young child. She was diagnosed with epileps...

3 Marras 202149min

Talking epilepsy and comedy with Maisie Adam - Purple Day bonuscast

Talking epilepsy and comedy with Maisie Adam - Purple Day bonuscast

“Ultimately, you have to find the light in it rather than the dark.”Epilepsy is hugely varied and affects everyone differently. For Purple Day 2021, we are excited to be able to share comedian Maisie ...

26 Maalis 202151min

What do you want to tell the world about epilepsy? - Purple Day bonuscast

What do you want to tell the world about epilepsy? - Purple Day bonuscast

Purple Day is all about people with epilepsy coming together to raise their voices and speak out. Listen to Derrick, Debbie, Murray, Bob, Phil, Lauren and Charlotte as they tell us about their epileps...

26 Maalis 202119min

Bonuscast - What’s changed with epilepsy in the last 70 years?

Bonuscast - What’s changed with epilepsy in the last 70 years?

What’s changed with epilepsy in the last 70 years? In this special bonuscast, we talk with Epilepsy Action Chief Executive Philip Lee about the history of epilepsy, key milestones and changes for peop...

21 Syys 202043min

ep 8 - A winning tale of friendship

ep 8 - A winning tale of friendship

Ellis, 9, was diagnosed with focal epilepsy in 2019. His whole world was turned upside down, becoming withdrawn and depressed. His seizures still aren’t under control. Reggie, a good school friend of ...

1 Syys 202026min

ep 7 - epilepsy and having a baby

ep 7 - epilepsy and having a baby

Ibby had baby daughter Niamh just under four weeks ago. She had seizures all through pregnancy, including just before the epidural for her C-section. We talk to her about being new to epilepsy, the jo...

10 Elo 202044min

ep 5 - Seize your adventure

ep 5 - Seize your adventure

After being diagnosed with epilepsy in 2015, Fran walked 500 miles of the Camino de Santiago in Spain two years later, solo. In 2019, she completed the 100KM Race to the Stones ultramarathon. We talk ...

15 Heinä 20201h 9min

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