What the New Cure for Sickle Cell Disease Really Means

What the New Cure for Sickle Cell Disease Really Means

The Food and Drug Administration has approved gene therapy as a treatment for sickle cell disease, effectively making a cure available to many people affected by the genetic disease. Sickle cell disease is a group of inherited red blood cell disorders and is the most common form of an inherited blood disorder.

In this episode, Kai is joined by Ashley Valentine of Sick Cells, which seeks to elevate the voices of the patient community to influence decision makers and empower people with the disease to use their voices and not feel alone. Ashley co-founded the organization along with her late brother Marqus Valentine, who had sickle cell disease. She helps put this historic F.D.A. decision into context and shares how her own life experience informs her work advocating for people with sickle cell disease.

Plus, we meet 21-year-old Magaly Ghonda, who underwent her own sickle cell treatment. Magaly shares how living with the genetic blood disorder shaped her life, the realities of a sickle cell cure, and what she’s looking forward to in her post-sickle cell future.

Tell us what you think. Instagram and X (Twitter): @noteswithkai. Email us at notes@wnyc.org. Send us a voice message by recording yourself on your phone and emailing us, or record one here.

Notes from America airs live on Sundays at 6 p.m. ET. The podcast episodes are lightly edited from our live broadcasts.

Tell us what you think. We're @noteswithkai on Instagram and X (Twitter). Email us at notes@wnyc.org. Send us a voice message by recording yourself on your phone and emailing us, or record one here.

Notes from America airs live on Sundays at 6 p.m. ET. The podcast episodes are lightly edited from our live broadcasts.

Jaksot(424)

Why We Can't (and Shouldn't) Move On From Jan. 6

Why We Can't (and Shouldn't) Move On From Jan. 6

Why We Can't (and Shouldn't) Move On From Jan. 6. Fordham University political science professor, Christina Greer, joins to takes our politics questions on the hearings and more. Plus, the story of 91...

13 Kesä 202252min

Keeping Score: Part 1

Keeping Score: Part 1

The John Jay Educational Campus, a large brick building in Park Slope, Brooklyn, houses four high schools: Cyberarts Studio Academy, the Secondary School for Law, Millennium Brooklyn, and Park Slope C...

9 Kesä 202229min

Schools Had a Tough Year. What’d We Learn?

Schools Had a Tough Year. What’d We Learn?

Schools Had a Tough Year. What’d We Learn? Plus, follow the season of a girl’s varsity volleyball team, and find one Brooklyn school building’s effort to bridge its stark racial divide. From WNYC’s ne...

6 Kesä 202247min

Alice Walker Is Very Happy, A Lot of the Time

Alice Walker Is Very Happy, A Lot of the Time

After publishing 34 books, Alice Walker talks through her latest release, a collection of personal journals spanning four decades. Read more in Gathering Blossoms Under Fire: The Journals of Alice Wal...

30 Touko 202249min

The Wolf Pack of White Nationalism

The Wolf Pack of White Nationalism

There are no “lone wolves” in the terrorist violence of white identity politics. So what’s that mean for white people who want to confront it? First, assistant secretary for homeland security under Pr...

23 Touko 202249min

Somebody, Sing a Black Girl’s Song

Somebody, Sing a Black Girl’s Song

An intergenerational meditation on Ntozake Shange’s iconic Broadway play, For Colored Girls Who Have Considered Suicide/When the Rainbow Is Enuf. First, host Kai Wright and producer speak with the dir...

16 Touko 202249min

Justice Alito Said the Quiet Part Out Loud

Justice Alito Said the Quiet Part Out Loud

His leaked opinion tells us more about a powerful minority’s view of the U.S. than it does about the Constitution or the history of abortion. Kai Wright talks to Susan Matthews,  news director at Slat...

9 Touko 202250min

The Abortion Clinic That Won't Go Quietly

The Abortion Clinic That Won't Go Quietly

In 2018, host Kai Wright visited the Alabama Women’s Center in Huntsville, to learn how abortion providers were dealing with the state’s new law that sought to make their practice a felony crime. The ...

5 Touko 202218min

Suosittua kategoriassa Politiikka ja uutiset

uutiscast
aikalisa
politiikan-puskaradio
ootsa-kuullut-tasta-2
rss-ootsa-kuullut-tasta
rss-pinnalla
tervo-halme
rss-vaalirankkurit-podcast
rss-podme-livebox
aihe
rss-asiastudio
the-ulkopolitist
rss-tasta-on-kyse-ivan-puopolo-verkkouutiset
rss-girls-finish-f1rst
otetaan-yhdet
et-sa-noin-voi-sanoo-esittaa
rss-50100-podcast
rss-polikulaari-pitka-kiekko-ja-muut-ts-podcastit
rss-ulkopoditiikkaa
rss-kaikki-uusiksi