Dementia Researcher Blogs24 Marras 2022

Dr Aida Suarez-Gonzalez - Embedding PPI in our ReadClear Tech Trial

Dr Aida Suárez-Gonzalez narrates her blog written for Dementia Researcher.

ReadClear is an app to support reading in posterior cortical atrophy (PCA). Aida and her team co-produced the service with a group of people living with PCA, and then went on to test it in a randomised clinical trial. Aida has blogged about the value of this PPI process in the past but has never written about how she supported participants to engage with the app during the trial and how co-production continued during the trial itself. Dr Ivanna Pavisic and Dr Dilek Ocal were the colleagues who conducted the ReadClear home-based trial with her. They travelled around England training participants on how to use the app and facilitating a context that led to new rounds of priceless feedback. In this blog Aida chats to both of them as they share their learnings and personal experience.

Find the original text, and narration here on our website.

https://www.dementiaresearcher.nihr.ac.uk/guest-blog-embedding-ppi-in-our-readclear-tech-trial/

We're always on the look out for new contributors, if you would like to write and narrate your own blog - drop us a line to dementiaresearcher@nihr.ac.uk

Don't forget to also listen to our fortnightly - published fortnightly, just look for Dementia Researcher in your podcast app.

Dr Aida Suarez-Gonzalez is a Clinical Neuropsychologist and Senior Research Fellow at the Dementia Research Centre, UCL Institute of Neurology at Queen Square. With many years clinical experience working in Spain, Aida now investigating non-pharmacological interventions, services and assistive technologies to support people living well with dementia.

This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. Enjoy listening? We're always looking for new bloggers, drop us a line dementiaresearcher@ucl.ac.uk

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