Positivity Beats IBD With Josef Miller

Does having inflammatory bowel disease (IBD) make you feel like a princess? Crohn’s disease and ulcerative colitis are not only painful, serious conditions, but they also carry stigma which leads to patients feeling isolated. Sophia Vicari, the founder of The Princess Promise, is creating a community that challenges the perception society has about digestive disease. Diagnosed with ulcerative colitis while in college, it didn’t take long before Sophia decided she needed to work to help others in the IBD community become more comfortable talking about poop. Hear Sophia’s disease journey, what it was like for her to be Miss Camden County, NJ, while living with ulcerative colitis, and how she plans to help women with IBD find their inner princess.     Find Sophia Vicari and the Princess Promise at: Facebook: https://www.facebook.com/theprincesspromise/ Instagram: https://www.instagram.com/theprincesspromise/ Blog: https://theprincesspromise.wixsite.com/theprincesspromise YouTube: https://www.youtube.com/channel/UCsxdtty50NGi6fPSOWcYqhA   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering and editing courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

11 Kesä 201938min

Every person that lives with Crohn’s disease or ulcerative colitis in the United States knows the challenges of dealing with health insurance companies. Denials of service are common, particularly when diagnostic tests are ordered or when a new drug is prescribed. A change in insurance carrier, which can come after a life event (such as getting married or changing jobs) or at the start of the calendar year is another time when patients may find themselves in the appeal process in order to get needed tests or medication. For Jaime Holland, a life change, an insurance change, a calendar year change, and a change in gastroenterologist culminated in her being in danger of not receiving her biologic medication on time. Hear Jaime tell the story of how the problem started, why she had to look to someone outside her physicians office and her insurance carrier to get it solved, and her tips to help you avoid similar insurance snafus. This episode is perfect not only for anyone living with inflammatory bowel disease (IBD) but also anyone who cares for those living with these diseases. Find Jaime Weinstein at: *Blog: http://prettyrottenguts.tumblr.com/ *Twitter: https://twitter.com/JaimeEditor *Instagram: https://www.instagram.com/slightlyjaided/ *YouTube: http://po.st/prKAKf   Find Amber J Tresca at: *Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 *Blog: http://aboutibd.com/ *Facebook: https://www.facebook.com/ibdcrohns/ *Twitter: https://twitter.com/aboutIBD *Pinterest: https://www.pinterest.com/aboutibd/ *Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

21 Touko 201937min

Living with Crohn’s disease or ulcerative colitis may have a significant affect on intimate relationships. The reasons for this are as individual as we are but can include pain, fatigue, medication side effects, and problems with body image. Kait Scalisi, an NYC-based sex educator who founded Passion by Kait, has devoted her professional life to helping women and couples learn to reconnect with themselves and their partner in order to enhance intimacy and reconnect with pleasure. Kait lives with Crohn’s disease and ankylosing spondylitis, and therefore has a deep understanding of how chronic conditions can affect intimate relationships (both with oneself and with a partner). Hear Kait’s Crohn’s disease journey and learn how she helps people find their way back to enjoying their spark, both in the bedroom and outside of it.   Find Kait Scalisi at: Web site: https://passionbykait.com/ Facebook: https://www.facebook.com/PassionbyKait/ Instagram: https://www.instagram.com/passionbykait/ Twitter: https://twitter.com/passionbykait YouTube: https://www.youtube.com/user/PassionbyKait Pinterest: https://www.pinterest.com/passionbykait/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

7 Touko 201935min

Many young people who are undergoing ileostomy surgery to treat Crohn’s disease or ulcerative colitis have never met another younger person with an ostomy. Gaylyn Henderson, founder of Gutless and Glamorous, wants to make sure that people living with inflammatory bowel disease (IBD) don’t experience the uncertainty and stigma that she encountered before her ostomy surgery. In between running a successful foundation and a support group for people with chronic illness, Gaylyn has also become a spokeswoman for people with an ostomy, proving that her ileostomy is not a barrier to success.   Concepts and ideas discussed on this episode: Crohn’s colitis: https://www.verywellhealth.com/what-is-crohns-colitis-1942589 Proctectomy: https://www.verywellhealth.com/proctectomy-surgery-for-inflammatory-bowel-disease-4122490 Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936 Stricture: https://www.verywellhealth.com/what-is-the-lumen-1942954 Avascular necrosis: https://www.verywellhealth.com/facts-about-osteonecrosis-189426 Find Gaylyn Henderson at: Blog: https://www.gutlessandglamorous.org Facebook: https://www.facebook.com/GutlessandGlamorous/ Twitter: https://twitter.com/GutlessGlamour Instagram: https://www.instagram.com/gutlessandglamorous/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

23 Huhti 201945min

People who live with Crohn’s disease and ulcerative colitis experience stigma because of their inflammatory bowel disease (IBD). The taboo topic of bowel disease can permeate all aspects of a person’s life, especially when there are cultural influences also at play.Tina Aswani Omprakash, who lives with Crohn's disease and a permanent ileostomy, shares her story of personal empowerment and how she is working to help other people with IBD live their lives with confidence. Tina describes how IBD has profoundly affected her family as well as why she decided to become an outspoken advocate for the IBD and ostomy communities and start her blog, Own Your Crohn’s. Concepts discussed on this episode: Pouchitis: https://www.verywellhealth.com/what-is-pouchitis-in-a-jpouch-1942974 Rectovaginal fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356 Perianal disease: https://www.verywellhealth.com/what-is-the-perianal-area-1942412 J-pouch: https://www.verywellhealth.com/before-during-and-after-j-pouch-surgery-4137938 Ileostomy: https://www.verywellhealth.com/what-you-need-to-know-about-ileostomy-surgery-1942936 Step therapy: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/steptherapy/ Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821 Pyoderma gangrenosum: https://www.verywellhealth.com/pyoderma-gangrenosum-skin-disorder-1943016 Erythema nodosum: https://www.verywellhealth.com/erythema-nodosum-1943012 Find Tina Aswani Omprakash at: Blog:http://ownyourcrohns.com/ Facebook:https://www.facebook.com/ownyourcrohns/ Twitter:https://twitter.com/ownyourcrohns Instagram:https://www.instagram.com/ownyourcrohns/ Find Amber J Tresca at: Verywell:https://www.verywell.com/ibd-crohns-colitis-4014703 Blog:http://aboutibd.com/ Facebook:https://www.facebook.com/aboutibd Twitter:https://twitter.com/aboutIBD Pinterest:https://www.pinterest.com/aboutibd/ Instagram:https://www.instagram.com/about_IBD/ Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

9 Huhti 201933min

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn’s and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media. 1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project Concepts and ideas discussed in this episode: Resources From the Crohn’s and Colitis Foundation: Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist Just Like Me: http://justlikemeibd.org Quiz My IBD: http://www.ibdskillsquiz.org Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/ Crohn’s & Colitis Community: https://www.crohnscolitiscommunity.org/ The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/ Find Dr Rajeev Jain at: Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/ Twitter: https://twitter.com/rajster Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

26 Maalis 201957min

It’s common for people with IBD to look online for patients who have a similar disease journey to their own. For men, however, there are fewer places to find such a peer because there are not as many men in the IBD influencer space as there are women. That’s where Rasheed Clarke, author of Three Tablets Twice Daily, blogger, and ulcerative colitis and j-pouch patient steps in. Hear Rasheed contrast how his running career is different before and after j-pouch surgery, his thoughts on being one of the few male voices in the online IBD community, how we can encourage more men to share their journey, and the wild and wonderful thing he did with a toilet for World IBD Day in 2017. Concepts and ideas discussed in this episode: J-pouch surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967 Colectomy surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059 Exercise and IBD: https://www.verywellhealth.com/exercising-with-ibd-4582068 World IBD Day: https://worldibdday.org Find Rasheed Clarke at: Blog: https://rasheedclarke.com Twitter: https://twitter.com/rasheedclarke Instagram: https://www.instagram.com/rasheedclarke/ Facebook: https://www.facebook.com/rasheedclarke Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

12 Maalis 201927min

What compels a person to share their personal journey with IBD? For Rasheed Clarke, author of Three Tablets Twice Daily, his writing began as a way to keep track of everything for himself and his healthcare team. It quickly turned into a tool that he used to show those around him the stark realities of a life with IBD: bloody diarrhea and all. His coworkers and friends were shocked to learn how much he was coping with every day but not everyone close to him approved of his honesty. On this episode of About IBD, Rasheed digs into the positives, the negatives, and the responsibilities that come with being an influencer in the IBD space.   Find Rasheed Clarke at: Blog: https://rasheedclarke.com Twitter: https://twitter.com/rasheedclarke Instagram: https://www.instagram.com/rasheedclarke/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

26 Helmi 201923min