Amber's Year in Books 2023

Is it possible to take the diagnosis that turned your world upside down and turn it into a positive force in your life? My guest on About IBD is Lilly Stairs, Head of Patient Advocacy at Clara Health who lives with Crohn’s disease did exactly that. First diagnosed with psoriatic arthritis, it was only after Lilly’s symptoms weren’t improving and she was in and out of the hospital that healthcare providers finally discovered a Crohn’s disease flare-up in her small bowel. Lilly found the right mix of treatments to get her Crohn’s under control and now works with her team at Clara to connect patients to clinical trials.    Find Lilly Stairs at Blog: https://www.lillystairs.com/ Twitter: https://twitter.com/LillyStairs Instagram: https://www.instagram.com/lillyrosestairs/ LinkedIn: https://www.linkedin.com/in/lillystairs/ Facebook: https://www.facebook.com/lilly.stairs.56   Find Clara Health at: Twitter: https://twitter.com/Clara_Health Instagram: https://www.instagram.com/clarahealth/ LinkedIn: https://www.linkedin.com/company/clara-health Facebook: https://www.facebook.com/clarahealth Patients Have Power Podcast: https://itunes.apple.com/us/podcast/patients-have-power/id1321097377?mt=2   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

16 Loka 201845min

What is your favorite week of the year? For the kids, counselors, and volunteers at Camp Oasis, their favorite is camp week. Learn more about a summer camp that’s designed especially for kids who have IBD but is also the place where the campers actually feel the most freedom from their disease. Amber visited camp on visitor’s day and talked with campers, leaders in training, and counselors to find out what makes Camp Oasis so special to them.  Find out more about Camp Oasis: http://www.crohnscolitisfoundation.org/get-involved/camp-oasis/ Find Camp Oasis locations: http://www.crohnscolitisfoundation.org/get-involved/camp-oasis/find-a-camp/ Crohn’s & Colitis Foundation: http://www.crohnscolitisfoundation.org/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

11 Syys 201832min

What happens when a diagnosis of Crohn’s disease stands between you and your chosen career? This is exactly the barrier that veteran journalist and news anchor Natalie Hayden faced in the early days after her IBD diagnosis. Her decision was to gather her support system around her and get camera ready. Find out how she made it as a morning news anchor, found the love of her life, started her family, and founded Lights, Camera, Crohn’s.   Find Natalie Hayden at: Blog: https://lightscameracrohns.com/ Twitter: https://twitter.com/nataliesparacio Facebook: https://www.facebook.com/natalieasparacio/ Instagram: https://www.instagram.com/natalieannhayden   Concepts, ideas, and advocates discussed on this episode: Intestinal Blockage: https://www.verywellhealth.com/intestinal-complications-of-ibd-1943043 Anal or Rectal Abscess: https://www.verywellhealth.com/perirectal-abscess-2328821 Resection Surgery: https://www.verywellhealth.com/resection-surgery-for-crohns-disease-1943058 The Potential Effects of IBD on Female Fertility: https://www.verywellhealth.com/effects-of-ibd-on-female-fertility-4126690 Sara Ringer, Inflamed and Untamed: http://www.inflamed-and-untamed.com/ Brooke, Crazy Creole Mommy: https://crazycreolemommy.com/ Eric, Vegan Ostomy: https://www.veganostomy.ca/ Christy, Crohnie Bologna: https://www.crohniebolognaibd.com/ Stephanie, The Stolen Colon: http://stolencolon.com/ Dan Sharp: http://dansharpibd.org/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

7 Elo 201853min

How does IBD impact the family? Couples who are thinking about having children when one or both of them have IBD often have questions about how the disease will affect their family. Amber interviews her 8-year-old daughter and 10-year-old son about how IBD does — and doesn’t — affect their lives. Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

24 Heinä 201826min

With an invisible illness such as IBD, it can be challenging to protect your quality of life. Patient influencers often push themselves in the service of others and that may seem strange to those that follow along on social media. How can someone be so sick and yet be able to attend a medical conference? Sara Ringer of Inflamed and Untamed explains how what you see online can be misleading and how she manages two difficult digestive diseases, all while striving to live a fulfilling life that includes being a resource for other patients seeking information and support. Concepts and ideas shared on this episode: Intestinal Pseudo-Obstruction: https://www.verywellhealth.com/intestinal-pseudo-obstruction-1942429 What You Need to Know About J-Pouch Surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967 Pouchitis After IPAA Surgery: https://www.verywellhealth.com/what-is-pouchitis-in-a-jpouch-1942974 Nasogastric (NG) Tubes and IBD: https://www.verywellhealth.com/nasogastric-ng-tube-1943087 What Is Fluoroscopy?: https://www.verywellhealth.com/what-is-fluoroscopy-1191847 Find Sara Ringer at: Blog: http://www.inflamed-and-untamed.com/ YouTube: https://www.youtube.com/channel/UC8JiwUtq1N6XW4LWfuII5xg Instagram: https://www.instagram.com/sara_ringer/ Facebook: https://www.facebook.com/Inflamed.Untamed Twitter: https://twitter.com/Sara_Ringer Pinterest: https://www.pinterest.com/Sara_Ringer/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

27 Kesä 201845min

How can we help new ostomates better adjust to their stoma? Megan Johnson, who you might better know as The Front Butt YouTuber, had a unique journey on the way to becoming a permanent ileostomate due to Crohn’s disease. Her experiences with the abysmal patient education material in the hospital after ostomy surgery sparked her desire to make accessible content that helps people adjust after surgery and “be comfortable in their own skin.”  This episode was recorded on location at HealtheVoices in Chicago, under challenging conditions, which is why the audio is less than pristine, but the content is extraordinarily compelling. Stick with it, and you’ll be glad you did! Megan Johnson, The Front Butt YouTuber at:  YouTube: https://www.youtube.com/user/TheFrontButttuber Blog: https://thefrontbuttyoutuber.wordpress.com/ Facebook: https://www.facebook.com/thefrontbuttyoutuber/ Twitter: https://twitter.com/FrontButtYouTR/ Instagram: https://www.instagram.com/the_front_butt_youtuber/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/ Additional audio engineering courtesy Mac Cooney https://www.facebook.com/michaelandrewcooney/

11 Kesä 201854min

It’s estimated that half of people who have an inflammatory bowel disease (IBD) try complementary and alternative medicine to treat their disease. Eric Polsinelli of Vegan Ostomy describes how he tried dozens of complementary therapies for his Crohn’s disease but never found anything that worked. He did, however, come away with vital insight about how people living with IBD can assess alternative therapies and talk to their physicians about working them into a comprehensive treatment plan. Find Eric Polsinelli, of Vegan Ostomy, at: Blog: https://www.veganostomy.ca/ YouTube: https://www.youtube.com/c/veganostomy/ Facebook: https://www.facebook.com/Veganostomy/ Twitter: https://twitter.com/veganostomy Instagram: https://www.instagram.com/vegan_ostomy/ Ostomeme: https://www.ostomeme.com Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

20 Touko 201840min

The healthcare space isn’t a level playing field. Minority populations face complex challenges when it comes to accessing and receiving care, which is why April is designated as National Minority Health Month. In regards to inflammatory bowel disease, it’s not well known that Crohn’s disease and ulcerative colitis also affect minorities. Shawntel Bethea of Chronically Strong and Brooke Abbott of The Crazy Creole Mommy Chronicles discuss how they’ve been affected by healthcare disparity and offer concrete ideas on what can be done to start addressing healthcare gaps in their communities. Learn more about National Minority Health Month here: https://minorityhealth.hhs.gov/NMHM18/ Find Shawntel Bethea, Chronically Strong, at: Blog: https://chronicallystrong.com/ YouTube: https://www.youtube.com/channel/UCrklcLJ7FvGtN-fOvJJM-jQ Facebook: https://www.facebook.com/chronicallystrongblog/ Twitter: https://twitter.com/shawnbethea_ Instagram: https://www.instagram.com/chronicallystrongblog/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

8 Touko 201843min