Narcolepsy + Art - Narcolepsy Nerd Alert Ep. 17

What’s your creative outlet? In this Narcolepsy Nerd Alert, an incredible panel of artists from around the world share their work and discuss the relationship between creative expression and living with narcolepsy.

About Our Guests:

Ulrike Nordquist is a mother of two, photographer, painter, and Rising Voices speaker living in Sweden. She developed type 1 narcolepsy with cataplexy at the age of 38 after receiving the Pandemrix H1N1 vaccine. During the years coping with her new situation, she made her passion for painting and photography into a business that fit her schedule. Ulrike conceptualizes her way of thinking: “I use self-luminous colors to lighten up dark parts in my paintings!”

Silence Hands is a mother of two and a multidisciplinary artist from Tennessee. She was diagnosed with type 1 narcolepsy with cataplexy at age 35 and wishes to motivate others to listen closely to what their bodies are telling them. As a speaker with Project Sleep’s Rising Voices program, Silence shares her experiences with others to improve awareness of narcolepsy and hopes to undo misconceptions of this neurological condition.

Shu Horiike is a freelance designer, web engineer, and digital art director living in Japan. His artwork expresses the specific feelings of narcolepsy and hypersomnia, with the fear of memories being sliced out, anxiety of shaking vision, distorted sounds, and feeling uncomfortable under the gaze of others. Shu is a member of the Japan Narcolepsy Association, and hopes to use his art to raise awareness of narcolepsy in Japan.

Jonathan Correa is a photography hobbyist and outdoor enthusiast. He was diagnosed with narcolepsy in 2014, more than 10 years after initial symptoms. Jonathan is a lifelong resident of the Shenandoah Valley in Virginia.

Dana Harel lives in Israel with her husband and two children. She is a developmental psychologist and an artist. She was diagnosed with type 1 narcolepsy with cataplexy at age 34, after living with symptoms since she was 18. Her artwork primarily involves paper craft, scrapbooking and mixed media.

Jayden Rowland is an art major at Oklahoma Community College. They were diagnosed with type 1 narcolepsy with cataplexy at age 15 and have been raising awareness ever since. As an artist and speaker with Project Sleep’s Rising Voices program, Jayden conveys the struggles of not being taken seriously, achieving a diagnosis, and their ongoing battle with depression and self-acceptance.

Download the Narcolepsy + Art Toolkit Toolkit for more resources: https://project-sleep.com/wp-content/uploads/2024/04/Narcolepsy-and-Art-Toolkit.pdf

Project Sleep's Sleep Helpline: https://project-sleep.com/helpline/

The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

Download podcast transcription here.