Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

Episode #044 - Title: Autism Research Roundup, with Dr. Alycia Halladay

We are delighted to bring back Dr. Alycia Halladay, Chief Science Officer of the Autism Science Foundation, who we first featured way back in Episode 4. Alycia and host Jill Escher debate some of the more recent developments in autism research, including studies on genetics, prevalence, early intervention, and ... TikTok! It's a long episode and a bit "in the weeds" on some pretty technical topics but we hope you find it thought-provoking. First they discuss a new paper that probes the role of "common genetic variants" in autism risk, and Jill expresses her dissatisfaction with the assumptions underlying the study. Prevalence is rising, and Alycia says it's not just one thing driving the increase. Early interventions show some promise in improving functioning in young autistic children, but not in overcoming autism. And, surprise (not), Tik Tok is full of autism misinformation....Links:

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Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

Episode #034 - Medicaid Funding for Autism Services, Part 1 with Melissa Harris, CMS

We are happy to present a two-part series with Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services (CMS). Her role is to develop and...

17 Huhti 202341min

Episode #033 - Bridging the Divide

Episode #033 - Bridging the Divide

After Tom McKean (ep 29) suggested that NCSA invite Morénike Giwa Onaiwu, a prominent neurodiversity advocate, on the podcast, we were thrilled when she agreed to join us for a special episode about t...

3 Huhti 20231h 11min

Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel

Episode #032 - The Case for Profound Autism, with Dr. Lee Wachtel

This is an audio recording of the NCSA March 14, 2023 webinar featuring Dr. Lee Elizabeth Wachtel, one of the world's foremost clinicians serving patients with severe and profound autism. She is Medic...

27 Maalis 20231h 16min

Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

Episode #031 - A Rare Gem: Paul Aronsohn, New Jersey's Ombudsman for I/DD

We are very fortunate to host Paul Aronsohn, New Jersey Ombudsman for Individuals with Intellectual or Developmental Disabilities and Their Families. Paul serves a unique role not seen in any other st...

20 Maalis 202356min

Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism

Episode #030 - The Film Beyond Takes Viewers into an Unimaginable World of Profound Autism

The brilliant new documentary film, "Beyond" features Tamara Mark, a Hollywood actress and dancer, and now single mom living in LA with her two grown sons who suffer from severe autism, Ian and Harry....

9 Maalis 202352min

Episode #029 - Just Say No to the Bullying of Autism Parents

Episode #029 - Just Say No to the Bullying of Autism Parents

Pioneering autism advocate Thomas McKean joins us again (he first appeared in Ep 13) to discuss the bizarre online phenomenon of anti-parent bullying by militant autism self-advocates. Like witch hunt...

20 Helmi 20231h 4min

Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Episode #028 - Finding the Fun: Skiing and Sports with Severe Autism

Outdoor activities bring joy to countless people with autism, all across the spectrum. We are incredibly honored to have two of the nation's top leaders in the field of sports and outdoor recreation f...

13 Helmi 202341min

Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Episode 027 - Thriving with Severe Autism at Bittersweet Farms

Bittersweet Farms, established in the mid-1980s in Ohio, is a pioneering model of a farmstead-based residential and day program serving adults with autism complex behavioral needs. In a world where se...

6 Helmi 202356min

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