Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photographer, podcaster, the director of social media for Autism Speaks, and the mother of three children, one of whom, 11 year-old Charlie, has an extreme form of autism and another, Jude, who is higher functioning. She also serves on the board of NCSA.

In this webinar and conversation Eileen shares the realities of Jude's profound autism, including persistent pica (ingestion of inedible objects), spitting, property destruction and aggression, her experiences being bullied online by neurodiversity adherents, her own autism diagnosis, and how she finds the time to share her story with the world while dealing with her son's life-threatening behaviors. Moderated by Jill Escher, NCSA. Links: The Autism Cafe: https://theautismcafe.com Adulting on the Spectrum podcast: https://www.autismspeaks.org/podcast/adulting-spectrum-meet-our-hosts Find us at NCSAutism.org

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Episode 10 - Unseen: Jess Ronne and a New Documentary about Extreme Caregiving

Episode 10 - Unseen: Jess Ronne and a New Documentary about Extreme Caregiving

Jess Ronne, mother of 8, including a teen son with autism and other neurodevelopmental disorders, is the main protagonist of a new documentary film, Unseen: How We're Failing Parent Caregivers. Jill E...

24 Touko 202230min

Episode 9 - Lucy Kross Wallace on the Distortions of the Neurodiversity Movement

Episode 9 - Lucy Kross Wallace on the Distortions of the Neurodiversity Movement

Lucy Kross Wallace is an accomplished writer and sophomore at Stanford University who has written about her disenchantment with the neurodiversity movement. In conversation with Jill Escher, Lucy tell...

23 Touko 202237min

Episode 8 - Matthew Siegel, MD on Treatment Programs for Severe Autism Behaviors

Episode 8 - Matthew Siegel, MD on Treatment Programs for Severe Autism Behaviors

Matthew Siegel, MD, Director of the Developmental Disorders Program, Maine Behavioral Health, Associate Professor of Psychiatry and Pediatrics of Tufts University and Faculty Scientist, MMC Research I...

16 Touko 202232min

Episode 7 - ICFs, HCBS, DSPs and More with Hugo Dwyer of VOR

Episode 7 - ICFs, HCBS, DSPs and More with Hugo Dwyer of VOR

We speak with Hugo Dwyer, executive director of VOR, or Voice of Reason, a national advocacy organization representing the needs of individuals with intellectual and developmental disabilities. VOR wo...

9 Touko 20221h 8min

Episode 6 - Cammie McGovern, Author of Hard Landings: Looking Into the Future for a Child with Autism

Episode 6 - Cammie McGovern, Author of Hard Landings: Looking Into the Future for a Child with Autism

Novelist and parent of an autistic child Cammie McGovern spent a year traveling around the country, visiting day and residential programs for autistic adults. She discusses what she found with Amy Lut...

2 Touko 202246min

Episode 5 - Care Ethics, with Philosopher and Disability Scholar Eva Feder Kittay

Episode 5 - Care Ethics, with Philosopher and Disability Scholar Eva Feder Kittay

Host Amy Lutz gets philosophical with prominent scholar Eva Feder Kittay, PhD, Distinguished Professor of Philosophy at Stony Brook University/SUNY. Dr Kittay, the mother of a severely intellectually ...

25 Huhti 202248min

Episode 4 - Is Autism Research Failing Us? A Conversation with Alycia Halladay, PhD

Episode 4 - Is Autism Research Failing Us? A Conversation with Alycia Halladay, PhD

Alycia Halladay, PhD, is Chief Science Officer of Autism Science Foundation and has years of experience working to promote and fund autism research. NCSA President Jill Escher talks with her about pro...

18 Huhti 202257min

Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

What are the different types of housing for autistic and I/DD adults? What's an ICF? What are Home and Community-Based Services? Why are waitlists so long? Why do some disability rights advocates atta...

11 Huhti 20221h 3min

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