Stephanie Herzog: Board Member for Cure Rare Disease, Working on Finding Cures for Duchenne Muscular Dystrophy for Her Son Max
Team Never Quit5 Loka 2022

Stephanie Herzog: Board Member for Cure Rare Disease, Working on Finding Cures for Duchenne Muscular Dystrophy for Her Son Max

When a rare genetic disorder hits home, it takes someone like this week’s Team Never Quit Podcast guest, Stephanie Herzog, to help find strategies to cure it. The Duchenne Muscular Dystrophy (DMD) diagnosis of her son, Max, was the driving force to connect her with Cure Rare Disease, who is currently developing life-saving therapeutics in collaboration with the world’s leading academics, clinicians, regulatory experts, translational experts, and manufacturing experts. Stephanie serves as a board member. The organization’s ground-breaking research is bringing to fruition the potential for permanent muscular regeneration, which was, at one time, science fiction.
In this episode you will hear:
  • When we learned about our son’s condition, we put together a golf tournament to raise funds because it was A: Our only option, and B: Our best option to cure our kid.
  • 80% of boys with Duchenne Muscular Dystrophy have a gene deletion in the dystrophin gene. Max has a duplication of the dystrophin gene.
  • In what should be the best time ever with your child, that’s when we find out he has this horrible disease.
  • We had like a funeral in our house for like a month.
  • The weight of his future was heavy.
  • Our team, through Crispr technology, hope to edit Max’s gene mutation.
  • 6 years ago, this was science fiction.
  • Boys usually get diagnosed between the ages of 4-6. They lose their ability to walk between the ages of 10 and 12. They usually lose their battle in their early 20s.
  • They’re literally knocking out the gene duplication along a string in his DNA on the cellular level.
  • Using the Crispr technology, the muscle cells are auto-correcting, producing dystrophin on their own.
  • You wonder: “How am I going to live with this? And you do.”
  • Faith is everything.
  • You need somebody to pray to.
  • When the going gets tough they have prayer.

Jaksot(462)

Mark Keller: Stories From A Fighter Pilot- Haunted Missions, 2 Brushes w/ Death & His Road To Recovery

Mark Keller: Stories From A Fighter Pilot- Haunted Missions, 2 Brushes w/ Death & His Road To Recovery

From Combat to Clarity: The Healing Journey of Mark Keller This week’s Team Never Quit episode features Lieutenant Commander Mark Keller, a retired U.S. Navy Naval Flight Officer who served his count...

21 Touko 20252h 46min

Bradley Geary & JD Donaldson: Talking BUD/s & Team Guy Chaos - A Tribute To Danny Dietz

Bradley Geary & JD Donaldson: Talking BUD/s & Team Guy Chaos - A Tribute To Danny Dietz

From the Mountains to the Mission: Commander J.D. Donaldson & Captain Bradley Geary’s Journey of Service and Sacrifice This week, Marcus and Melanie welcome Commander Jed “J.D.” Donaldson, and Captai...

14 Touko 20252h 34min

Beau Dooley: A Green Beret’s Mission to Inspire Through Creativity & Storytelling

Beau Dooley: A Green Beret’s Mission to Inspire Through Creativity & Storytelling

Beyond the Green Beret — Healing, Creativity, and Advocacy In this week’s powerful episode, Marcus and Melanie sit down with Beau Dooley, a former Green Beret whose journey has taken him from the fro...

7 Touko 20251h 7min

Jared Ogden: How a Navy SEAL’s Vision is Transforming Tactical Training, CEO of Triumph Systems

Jared Ogden: How a Navy SEAL’s Vision is Transforming Tactical Training, CEO of Triumph Systems

From Battlefield to Breakthrough: Jared Ogden's Mission to Revolutionize Training   In this week's Team Never Quit episode, Marcus & Melanie welcome Jared Ogden, CEO of Triumph Systems and former U.S....

30 Huhti 20251h 8min

Col. Hank Donigan: 30+ Years in the Marines, Brain Surgery, Now Racing His 500th Marathon At Age 68

Col. Hank Donigan: 30+ Years in the Marines, Brain Surgery, Now Racing His 500th Marathon At Age 68

Marines, Marathons, and Meaning: The Legacy of Col. Hank Donigan In this week’s Team Neer Quit podcast, Marcus and Melanie speak with Retired Colonel Hank Donigan—a Marine whose life reads like a bat...

23 Huhti 202543min

Evangelo “Vann” Morris: From Small-Town Louisiana to Deep Sea Nuclear Subs—And the Moment That Changed Everything

Evangelo “Vann” Morris: From Small-Town Louisiana to Deep Sea Nuclear Subs—And the Moment That Changed Everything

Combat Veteran Turned Motivational Speaker In this week’s powerful episode from Team Never Quit, Marcus and Melanie meet with Evangelo “Vann” Morris—a retired Navy Lieutenant Commander, global speake...

16 Huhti 20251h 16min

Rep. Jason Crow: Former Army Ranger Captain & Bronze Star Recipient Serving a New Mission in the Halls of Congress

Rep. Jason Crow: Former Army Ranger Captain & Bronze Star Recipient Serving a New Mission in the Halls of Congress

From Ranger to Representative: Jason Crow on Service, Sacrifice, and Solutions  In this week’s Team Never Quit Podcast, Marcus and Melanie are honored to welcome Congressman Jason Crow, who represents...

9 Huhti 202554min

Chad Caruso: Skating Across America For A Cause & Inspiring The Nation, Guinness Book World Record Holder

Chad Caruso: Skating Across America For A Cause & Inspiring The Nation, Guinness Book World Record Holder

Skating Across America for Sobriety and Purpose In this week’s Team Never Quit episode, Marcus and Melanie are joined by the incredible Chad Caruso — a skateboarder, YouTuber, and Guinness World Recor...

2 Huhti 202544min

Suosittua kategoriassa Koulutus

rss-murhan-anatomia
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
rss-narsisti
rss-liian-kuuma-peruna
adhd-podi
rss-rahamania
rss-niinku-asia-on
psykologia
rss-tietoinen-yhteys-podcast-2
puhutaan-koiraa
kesken
rss-psykalab
rss-valo-minussa-2
rss-duodecim-lehti
rss-vapaudu-voimaasi
rss-rentotapaus
rss-lasnaolon-hetkia-mindfulness-tutuksi
rss-luonnollinen-synnytys-podcast
rss-hereilla