Cystic Fibrosis Podcast 238 - Dealing With A Spouse’s Pulmonary Exacerbations

Cystic Fibrosis Podcast 238 - Dealing With A Spouse’s Pulmonary Exacerbations

“I would tell a caregiver or a spouse of someone with CF that – all of those things you are feeling, the fatigue, the anger, the resentment, all of that is okay because we’ve all gone through that. It’s also really important for you, the caregiver, to take care of yourself.” Jerry sat down with Tom Kaminski, his wife of 27 years, Lynn, and their son JT to learn more about how they’ve dealt with Lynn’s pulmonary exacerbations over the years. Tom shared his story as a husband and caretaker, discussed how he knew Lynn’s health was declining, and how he admires his wife’s resilience at the most difficult times. Tune in to learn more. This video podcast was made possible through an unrestricted education grant from Corbus to the Boomer Esiason Foundation.

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Jaksot(22)

Cystic Fibrosis Podcast 250 - Being A CF Mom

Cystic Fibrosis Podcast 250 - Being A CF Mom

In Jerry’s latest podcast, we meet Beth Gerritsen – mother to Charlie, who has cystic fibrosis, and Willie, who does not. From raising her boys in the Virgin Islands to moving back to the states, she ...

15 Kesä 20216min

Cystic Fibrosis Podcast 249 - CF Siblings Supporting Each Other

Cystic Fibrosis Podcast 249 - CF Siblings Supporting Each Other

In his latest podcast, Jerry chatted with Charlie, 11 with CF, and his older brother Willie about the CF-sibling relationship. They talk about spending almost all of their time together, playing sport...

8 Kesä 20217min

Cystic Fibrosis Podcast 248 - The Salty Scholar

Cystic Fibrosis Podcast 248 - The Salty Scholar

In the latest CF Podcast, we meet Griffin Taylor, a 15-year-old who loves lacrosse and squash, is on his school’s robotics team, and is his class’s treasurer. During quarantine, Griffin started The Sa...

12 Touko 20216min

Cystic Fibrosis Podcast 247 - Patient and Family Education – ZephyRx

Cystic Fibrosis Podcast 247 - Patient and Family Education – ZephyRx

In the latest CF Podcast, Jerry speaks with Dwight Cheu, CEO of ZephyRx, a home-based respiratory diagnostic testing and therapy that allows patients to actively manage and improve their own lung heal...

16 Maalis 20217min

Cystic Fibrosis Podcast 246 - Dealing with Post-transplant PTLD

Cystic Fibrosis Podcast 246 - Dealing with Post-transplant PTLD

The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the second...

9 Maalis 20218min

Cystic Fibrosis Podcast 245 - Advocating For Your Rare Disease

Cystic Fibrosis Podcast 245 - Advocating For Your Rare Disease

The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the first e...

24 Helmi 20218min

Cystic Fibrosis Podcast 244 - Accepting Cystic Fibrosis

Cystic Fibrosis Podcast 244 - Accepting Cystic Fibrosis

“I believe in enjoying life and living it to the fullest, having fun, and just enjoying time.” Brayden Walsh, a 16-year-old living with CF, joins Jerry Cahill’s CF Podcast to share his experience as ...

24 Helmi 20216min

Cystic Fibrosis Podcast 243 - Importance Of Exercise And Nutrition

Cystic Fibrosis Podcast 243 - Importance Of Exercise And Nutrition

In the latest CF Podcast, Anthony Esposito, aka Espo 2, shares why he loves fitness and nutrition. While he doesn’t have CF himself, he wants to inspire all people to improve their health with his You...

28 Tammi 20214min

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