Living With Cystic Fibrosis8 Maalis 2021

National Organization of African Americans with Cystic Fibrosis (NOAACF)

Thirty thousand people in the United States have cystic fibrosis, and 5 percent of those people are African Americans. At least that's what the statistics show. Michele and Terry Wright believe (and the Bonnell Foundation agrees) that the percentage is actually higher. The problem is that people who are African American aren't being properly diagnosed. This is why the couple (Terry has CF) started The National Organization of African Americans with Cystic Fibrosis. Terry wasn't diagnosed with cystic fibrosis until he was 54 years old. Listen to their amazing journey.

For more information on The Bonnell Foundation, find us at https://thebonnellfoundation.org/

Find the National Association of African Americans with Cystic Fibrosis: https://noaacf.org/

Vertex Pharma - the science of possibility. https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis. You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Tuskegee information about "testing" of African Americans: https://www.cdc.gov/tuskegee/timeline.htm

Graphic designer: https://cindyromano.com

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Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

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Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

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