The Anomaly: living off donated organs and dark humor by Inka Nisinbaum
What would you do if you didn't know what your future held? For people living with cystic fibrosis, uncertainty is often a constant companion. Inka Nisinbaum faced one of the biggest unknowns of her l...
27 Heinä 47min
Ireland's Rising Golf Star, David Howard, who happens to have CF
Luck of the Irish. Irish international amateur golfer David Howard doesn't seem to need luck with all the talent he has. We had an inspiring conversation about chasing big dreams while living with ...
20 Heinä 44min
CF Scholars: Stories of Determination
Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their...
13 Heinä 53min
Turning family loss into hope: Kate O'Donnell's story
I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now...
6 Heinä 44min
Jon Gay on Radio, Podcasting, and the Art of Storytelling
Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...
29 Kesä 48min
Running changed and saved her life - Katie O'Grady inspires
"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady. CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...
22 Kesä 38min
Final Breath, First New Life: Jillian’s Transplant Journey
“Take in your final breath before your first new one.” Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...
15 Kesä 26min
Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.
Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...
8 Kesä 58min
