Episode 239: New Research Goals Set by the International Progressive MS Alliance with Dr. Robert Fox

A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years.

Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox.

The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question?

We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS.

We're sharing study results that show your nose knows when your DMT is working well for you.

We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS.

And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

International Progressive MS Alliance unveils a new 3-year strategic plan :22

Survey results raise a larger question -- How do we share MS research news with people affected by MS??? 1:04

Online mindfulness provides significant improvement for managing depression among people with MS 16:14

Using your nose to determine the efficacy of your disease-modifying therapy 8:33

NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS 14:14

Dr. Robert Fox discusses what's next for the International Progressive MS Alliance 17:28

Share this episode 28:07

Have you downloaded the RealTalk MS app? 28:27

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

International Progressive MS Alliance
https://progressivemsalliance.org

STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression
https://journals.sagepub.com/doi/10.1177/13524585211068002

STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/1354285221079744

STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Fluid Biomarkers in Progressive MS
https://academic.oup.com/stcltm/article/11/1/55/6528889

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RealTalk MS Episode 239
Guests: Dr. Robert Fox

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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