Episode 290: Creating Change Through MS Advocacy with Holly Pendell and Angel Hardy Heinz
RealTalk MS20 Maalis 2023

Episode 290: Creating Change Through MS Advocacy with Holly Pendell and Angel Hardy Heinz

If you're a regular listener, you've heard me say that the things that people affected by MS want the most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, functions of public policy. The people who decide whether we get these things are our elected officials at both the state and federal level. That's why advocacy should be a high priority for everyone affected by MS.

Make no mistake. MS advocacy delivers real results. Joining me in exploring how advocacy drives changes that improve the lives of people living with MS, and why you may want to consider becoming an MS activist, are Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz.

Ready to learn more about MS advocacy? You can take the next step from the comfort of your own home. We're sharing the details of next week's virtual MS Activist Rally.

We'll tell you about a study that found a Mediterranean Diet could have a positive impact on cognition among people living with MS

You'll learn about a clinical trial that's currently underway to determine whether aerobic exercise can promote myelin repair.

We're sharing the details about an upcoming International Progressive MS Alliance webcast that's focused on developing treatments for progressive MS.

And we'll tell you how high school seniors or college graduates who are affected by MS can apply for an Oscar the MS Monkey academic scholarship.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're all about MS advocacy :22

The virtual MS Activist Rally takes place March 28. Are you registered??? 5:22

STUDY RESULTS: Mediterranean Diet Is associated with cognition in MS 8:01

A clinical trial is underway to determine whether aerobic exercise can promote myelin repair 9:43

The International Progressive MS Alliance is hosting a webcast focused on developing treatments for progressive MS 11:01

Oscar the MS Monkey is accepting academic scholarship applications from high school seniors and college graduates who are affected by MS 11:57

Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz discuss how advocacy makes a real difference in the lives of people affected by MS, and how you can get involved 13:49

Share this episode 27:12

Have you downloaded the free RealTalk MS app? 27:32

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/290

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society MS Activist Rally registration
https://p2a.co/Rally2023

STUDY: Mediterranean Diet is Associated with Cognition in Multiple Sclerosis
https://aan.com/MSA/Public/Events/AbstractDetails/52954

Webcast: Developing Treatments to End MS Progression registration
https://msif.org/progressiveMSwebcast

Oscar the MS Monkey Academic Scholarship Application
http://mroscarmonkey.org/site/Scholarship%20Application%202023.pdf

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 290
Guests: Holly Pendell and Angel Hardy Heinz

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Jaksot(505)

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Special Episode: Participating in MS Research with Chiquita Shepard-Knight and Earl Sneed

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, you'll meet two participants from the TEAM...

20 Marras 202516min

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Episode 429: Caring for Your Partner with MS While Holding Down a Full-Time Job with Diana Grazio

Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an inc...

17 Marras 202530min

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

Episode 428: The Effects of Smoking, Consuming Alcohol, and Consuming Caffeine on Your MS with Dr. Barbara Giesser

As researchers continue to learn about MS, it becomes clear that you can change the trajectory of your MS journey and improve your quality of life by making smart lifestyle choices. Quitting smoking a...

10 Marras 202532min

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

Episode 427: Science-Based Vaccine Guidance for People Living with MS with Dr. Lisa Doggett

When you're living with a chronic condition like MS, you want to be sure you're doing everything you can to preserve and promote good health. And, right now, you may be feeling confused about whether ...

3 Marras 202527min

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Episode 426: Fighting Her Way Through the Health Insurance Maze with Cassandra Ashby

Some disease-modifying therapies can change the trajectory of your MS journey. But gaining access to those medications isn't always as easy or straightforward as it should be. In the United States, in...

27 Loka 202532min

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Episode 425: The ECTRIMS 2025 Deep Dive with Dr. Bruce Bebo

Just about a month ago, 9,600 researchers, clinicians, and representatives from patient advocacy organizations gathered in Barcelona for the European Committee on Treatment and Research in MS annual s...

20 Loka 202533min

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Jan Janisch-Hanzlik lives with MS and is a participant in one of the clinical trials evaluating the safety and efficacy of CAR-T cell therapy for MS. Jan is the first person in the world to receive th...

13 Loka 202533min

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Special Episode: The Risks and Rewards of Participating in Clinical Trials with Dr. Kathy Zackowski and Mimi Brown

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi. In today's episode, we're exploring the risks and rewards of...

10 Loka 202521min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
tiedenaiset-podcast
vakeva-elama-viisaampi-mieli-vahvempi-keho
psykopodiaa-podcast
rss-pitaisko-erota
katilon-kahvitunti
puhu-muru
rss-uplevel-by-sonja-hannus
rss-rakas-mielenterveyteni
rss-narsisti
terapiassa
rss-ehjaksi
rss-duodecim-lehti
rss-vapaudu-voimaasi
selviytyjat-tarinoita-elamasta
rss-pt-paahtio
rss-eropodi
rss-mighty-finland-podcast
rss-kyykkya-ja-kuoharia